As they say, "from your lips, to God's ears."

Nick
I wish that for you too! Hope 2026 is the year of a cure

The main side effect I got from Velcade was eye issues. Not styes, but inflammation and blocked oil glands. I did however get hives only once, not food related, and according to my oncologist, in all likelihood not lenalidomide related, as it would have happened from the start, not over a year later. In both instances, I was given drops/ ointment for the eyes, plus using dry heat to reduce swelling (basically, putting rice in a sock, and then microwaving for 20 seconds), and a cream for the hives.
Currently I'm on lenalidomide 10mg/Eliquis 5mg for maintenance, but not in remission. NYU Langone says stable in lieu of remission.
I'll take stable for many years to come!
Let's all hope that there is a major breakthrough to at least prolong a relapse, but in reality, get to a total eradication!

I'm pretty certain Velcade gave me peripheral neuropathy. Feet and hands

I was on velcade from when I was diagnosed in July 2016 till Febr 2019. I would get a red itchy spot around the injection site. It was a raised itchy spot the size of a golf ball. It was itchy so I put hydrocortisone on it.nit would be gone in a couple of days. I never got a rash anywhere else.