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I would love to hear from people that have had car t recently.

A MyMyelomaTeam Member asked a question 💭
Baltimore, MD

How was the recovery and the side effects. Were you inpatient or out.

February 8
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A MyMyelomaTeam Member

Great to know. Was the first car t a hard recovery?

March 25
A MyMyelomaTeam Member

Recovery from CAR T, CARVYKTI, March 2023, inpatient; gradually gained back my strength and was in remission for 18 months.
When myeloma returned, I had a 2nd CAR T, ABECMA November 2024 but it failed.
Began a bi-specific, TALVEY in Jan 2025 and still on it, in remission.

March 25
A MyMyelomaTeam Member

I was in Huntsman Hospital for recovery for 3 weeks. It was very draining for me & took a good 6-9 months before having much strength after the SCT. Eventually you do get stronger, just takes time..

February 8
MyMyelomaTeam

How was the recovery and side effects for people who recently had CAR T-cell therapy?

After receiving CAR T-cell therapy, people often need to stay in the hospital for several weeks so doctors can monitor how the treatment is working and manage any side effects. Even after being discharged, you may need to stay close to Show Full Answer

How was the recovery and side effects for people who recently had CAR T-cell therapy?

After receiving CAR T-cell therapy, people often need to stay in the hospital for several weeks so doctors can monitor how the treatment is working and manage any side effects. Even after being discharged, you may need to stay close to the treatment center for a month or more in case complications arise.

Recovery varies, but most people experience some side effects. The good news is that CAR T-cell therapy generally causes fewer side effects than a stem cell transplant.

Common side effects include:
* Tiredness
* Infections
* Muscle aches
* Fever and chills
* Headache
* Nausea and diarrhea
* Loss of appetite

The most serious potential side effect is cytokine release syndrome (CRS), which can cause flu-like symptoms, breathing problems, and confusion. In clinical trials, about 84% of people experienced CRS, but most cases were mild. Only about 1.5% had severe CRS, which can be treated with medications.

Some people also experience neurotoxicity, which can cause confusion or trouble speaking.

It's important to discuss all potential risks and benefits with your doctor before treatment, as they know your specific situation best.

February 8

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I'd like to hear from someone who has had Stem Cell Transplant or CAR-T Therapy.

A MyMyelomaTeam Member asked a question 💭
New Jersey City, NJ
August 31, 2025

has anyone had experience with CAR-T therapy for MM.?

A MyMyelomaTeam Member asked a question 💭
Debary, FL
June 9, 2019

CAR-T Cell Therapy for Multiple Myeloma: What Is It?
33% Stay Myeloma-Free 5 Years After CAR T-Cell Therapy
How Would You Use $100,000 To Improve Myeloma Care?
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