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A MyMyelomaTeam Member asked a question 💭
Winnipeg, MB Canada
January 29
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A MyMyelomaTeam Member

Hi Rose2,

I've only been in remission for about eight months, I'm a 75yo male and I only started relaxing about three months ago. I hope you are able to start earlier. I would suggest trusting the oncologist who got you to remission, trying to exercise enough to regain some muscle tone, develop a new play list of songs which you enjoy as well as eating what you enjoy and planning enjoyable activities which you may not have been able to enjoy in the recent past.

I always start my day with a prayer of thanksgiving, no matter how I feel when I wake up.

February 1
A MyMyelomaTeam Member

Rose, my husband is on 5 mg revlimid 21 days out of 28 for maintenance.

January 31
A MyMyelomaTeam Member

It depends. Usually with standard risk it's Revlimid. I'm high risk so I get Darzalex monthly and Pomalyst 2mg 21 out of 28 days.

January 30
MyMyelomaTeam

What is maintenance therapy after achieving full remission?

Maintenance therapy is ongoing treatment that starts after you've completed your initial treatment (induction therapy) and consolidation therapy, which often includes a stem cell transplant. The goal is to keep myeloma in remission for as long as possible by Show Full Answer

What is maintenance therapy after achieving full remission?

Maintenance therapy is ongoing treatment that starts after you've completed your initial treatment (induction therapy) and consolidation therapy, which often includes a stem cell transplant. The goal is to keep myeloma in remission for as long as possible by eliminating any remaining cancer cells in your body.

Even when you achieve complete remission—meaning no cancer shows up on tests—some myeloma cells may still exist at levels too small to detect. Maintenance therapy works to prevent these cells from growing back and causing a relapse.

The most common maintenance therapy is lenalidomide (Revlimid), which has become the standard of care. Studies show it can help maintain remission for around 57 months after a stem cell transplant, compared to about 30 months without maintenance treatment.

There's no strict rule for how long maintenance therapy lasts. Many doctors now recommend continuing it indefinitely—until the disease progresses or side effects become too difficult to manage—since research suggests it may become more effective over time.

It's important to stick with your maintenance plan as prescribed, since about 30 percent of people don't follow their treatment closely, which increases the risk of myeloma returning.

January 29
A MyMyelomaTeam Member

That is the same dosage I'm taking. Been in remission for 3 years!

February 1

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