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A MyMyelomaTeam Member asked a question 💭
Santa Ana, CA

After flying to Seattle one year, I realized I would probably never go back to see family in that area, because my oxygenation on the plane went
into the 80’s and I could not stay awake. It was a little scary. When you combine SMM with a heart condition interesting things happen!

January 23 (edited)
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Answer Summary

Members shared deeply about the difficult realities of limited travel with serious health conditions, with several describing how oxygen... Read more

Members shared deeply about the difficult realities of limited travel with serious health conditions, with several describing how oxygen desaturation on flights, COPD, and other complications have forced them to reconsider long-distance visits to loved ones. Many offered practical alternatives to stay connected, including airline-approved portable oxygen devices, video calls through FaceTime or WhatsApp, and choosing car or train travel when possible to avoid the risks of flying. A recurring theme was reframing physical distance not as farewell but as adaptation, with members emphasizing that choosing safety over pushing past limits is an act of strength and wisdom, not defeat.

A MyMyelomaTeam Member

To Paula🌹

Moments like that bring clarity. When the body sets limits, it asks us to listen — not with fear, but with respect. Realizing that certain trips may no longer be safe can be unsettling, and it’s okay if that realization carries emotion.

When health conditions overlap, things change. Travel, energy, and recovery all ask for more care. That doesn’t mean connection is lost — it just finds new forms. Presence becomes less about distance and more about intention.

What matters most is honoring safety and well-being. Choosing not to push past limits isn’t giving up; it’s adapting wisely. That kind of adjustment takes strength.

It isn’t a farewell.
It’s listening.
🌸

January 23
A MyMyelomaTeam Member

I vote for the car ride or train, if possible. Don't take chances on your health.

January 24
A MyMyelomaTeam Member

My mother traveled a lot in her last decade of life, while battling chronic COPD from years of smoking. And she always travel with a small portable, over the shoulder oxygen unit. That said, I have found my use of FaceTime keeps me up to date with my close friends- and it’s as good as being in the same room as them, without the travel!

January 24
A MyMyelomaTeam Member

Hi Paula
There are Airline Approved Portable Oxygen devices

I don’t know the details but they may be able to provide you with a safe way to travel

January 23
A MyMyelomaTeam Member

Car t does not have many side effects, the Janssen product cartivie i only had slight fever,2 years past car t I'm great,and cured

February 10

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Connecticut, CT

A MyMyelomaTeam Member asked a question 💭
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