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Real members of MyMyelomaTeam have posted questions and answers that support our community guidelines, and should not be taken as medical advice. Looking for the latest medically reviewed content by doctors and experts? Visit our resource section.
A MyMyelomaTeam Member asked a question 💭
want to share a little update about my journey. Recently I went for a CT scan of my lungs, and today the doctor explained the results to me. They found some changes in my left lung compared to before. There are areas where the lung lining looks thicker, and a small mass in the lower part of the left lung has grown a bit since my last scan. Because of these changes, the doctors want to do another test called a bronchoscopy, where they use a small camera to look inside the airways and take samples to understand it better. Hearing all this was not easy for me. It made me emotional because it feels like one thing after another. But at the same time, I am thankful that I am already under medical care and the doctors are taking steps to find out exactly what

1 How do you think about recovery as a process rather than a single point in time?

2 What signs tell you the body is still recalibrating after treatment?

3 What parts of immune recovery usually take the longest in
your experience?

January 23
 · 
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A MyMyelomaTeam Member

1 How do you think about recovery as a process rather than a single point in time?-

“Yes — I absolutely think about recovery as a process, not a single moment.
Even when someone is in remission and off treatment, the body is still adjusting. Blood counts, especially white cells, often lag behind everything else. That doesn’t mean something is wrong — it usually means the system is still finding its new balance.”

2 What signs tell you the body is still
recalibrating after treatment?-

Signs the body is recalibrating include mild fluctuations in labs without symptoms, gradual stabilization over time, and everything else looking strong.”When hemoglobin, platelets, kidney function, and disease markers stay steady, that’s very reassuring. Small ups and downs in white counts are common during this phase.

3 What parts of immune recovery usually take the longest in
your experience?

“In my experience, immune recovery — particularly white blood cells — is one of the slowest things to normalize.” Li
Neutrophils and lymphocytes can take months to settle, and sometimes they never return to pre-treatment ‘normal’ but instead find a safe, stable baseline. What matters most is stability and how you’re doing clinically, not chasing a perfect number.

January 23
A MyMyelomaTeam Member

Great questions. I just follow my blood work and try to stay healthy.

January 24
A MyMyelomaTeam Member

Recovery is definitely an ongoing progress, sometimes moving right along and other times at a snails pace. Just never give up.

January 23
A MyMyelomaTeam Member

Mohd, this is a very positive way of looking at recovery. For me it's a challenge every day to stay positive, exercise and eat healthy. I have come a very long way since being diagnosed 9 years ago. It a marathon for sure.

January 23
A MyMyelomaTeam Member

Hi MohdSukor:
I hope you are feeling good today. When I had a bone marrow transplant in 2014 after an aggressive Valcade injection round weekly which seemed like all summer plus 2 back surgeries, I felt great after resting to recover at home. I was happy & felt so much better! To keep me in balance, I did several treatments the next few years, Dara (Darsalex) being my favorite lasting 3 years for me. Then headed for CAR-T. I had the CAR-T in 2024 and it was a God sent. I was now 10 years older so a little harder on me so I slept more but reality is, I’m 18 months out & still no sign of multiple myeloma. I was one of the 1st to go thru this procedure & understand it is improving every year. I share this for your information & my hope is, it will help you & others with cancer , Also, I am plant based when eating & occasional seafood.
I have always tried to walk when doing treatments…no rules just move. Best of everything !

January 23

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