Connect with others who understand.

  •   Learn from expert-reviewed resources
  •   Real advice from people who’ve been there
  •   People who understand what you’re going through
Sign Up Log In
Powered By
Real members of MyMyelomaTeam have posted questions and answers that support our community guidelines, and should not be taken as medical advice. Looking for the latest medically reviewed content by doctors and experts? Visit our resource section.
January 22
 · 
Be the first to react
A MyMyelomaTeam Member

Hi I used google to translate to English so all could see your response.
Translation:
I have been taking lenalidomide for 20 months now—10 mg, then 5 mg, and finally 2.5 mg. The problem for me is cutaneous: a large patch of bumps, especially on one leg and less so on the arms, which does not respond to corticosteroids.

September 27
A MyMyelomaTeam Member

Je prends le lenalidomide depuis 20 mois maintenant 10,puis 5 et enfin 2,5 le problème pour moi est cutané grosse plaque de boutons surtout sur une jambe et moins sur les bras qui ne répondent pas aux corticoides

September 27
A MyMyelomaTeam Member

Hi I took 3-10 mg pills and day three I couldn’t form a sentence.
I stopped taking it and reported to my doctor.
Had a CT scan and thank God didn’t have a stroke.
It’s impressive how many people have no side effects.

September 26
A MyMyelomaTeam Member

I was on Lenalidomide and couldn’t tolerate it. Three attempts all brought me out in a full body rash. I was like a lobster and so very uncomfortable and itchy. Now on injections.

January 23
A MyMyelomaTeam Member

My first two doses I had a rash took allergy meds to help. Other than that I don't believe any side effects but I do like the seven days off! Please let your Dr/team know so they can help you. I keep a simple daily journal on my phone for meds/side effects and questions for my next visit.

January 23 (edited)

Related Questions

View All
A MyMyelomaTeam Member asked a question 💭
Ukonlahti, FI

A MyMyelomaTeam Member asked a question 💭
Pretoria, ZA

Continue with Facebook
Continue with Google
By joining, you accept our Terms of Use, and acknowledge our collection, sharing, and use of your data in accordance with our Health Data and Privacy policies.
Already a member? Log In