MyMyelomaTeam

What are the signs of end-of-life in myeloma, and how can you prepare as a spouse?

The symptoms your husband is experiencing—increased fatigue, severe bone pain, and hallucinations—can occur in advanced myeloma. It's important to discuss these changes with his healthcare team right away, as they can help determine what's Show Full Answer

What are the signs of end-of-life in myeloma, and how can you prepare as a spouse?

The symptoms your husband is experiencing—increased fatigue, severe bone pain, and hallucinations—can occur in advanced myeloma. It's important to discuss these changes with his healthcare team right away, as they can help determine what's happening and provide appropriate support.

Signs that may appear in the final weeks include:
- Increasing exhaustion and spending much more time sleeping
- Weight loss and trouble eating or drinking
- Difficulties focusing or carrying on conversations
- Losing interest in the outside world
- Confusion and not remembering people around them
- Seeing or hearing things that aren't there (hallucinations)

In the final days, additional signs may develop:
- Slower, louder breathing
- Dry mouth and lips
- Loss of bladder or bowel control
- Repetitive body movements

How to prepare as a spouse:

Consider creating an advance directive—a legal document that communicates his end-of-life medical wishes. This helps ensure his preferences are honored if he can't make decisions himself. You can also designate someone to make decisions on his behalf.

Practical steps include:
- Gathering important documents (bank accounts, real estate information, passwords)
- Deciding who he wants present during his final time
- Making a list of people to contact
- Discussing funeral arrangements
- Talking with his healthcare team about any religious or cultural customs

His healthcare team can provide guidance on whom to call with questions or concerns. If working with hospice, they'll help monitor his comfort and provide support for both of you.

Take time for yourself when needed—caring for someone with advanced myeloma is emotionally and physically demanding.

 AI-generated responses are not a substitute for medical advice. These services are not intended to diagnose, treat, or cure any condition or disease. Always ask your doctor about specific health concerns.

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