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Real members of MyMyelomaTeam have posted questions and answers that support our community guidelines, and should not be taken as medical advice. Looking for the latest medically reviewed content by doctors and experts? Visit our resource section.

Has anyone had CAR-T treatment after relapse and what was your experience? Where did you have the treatment?

A MyMyelomaTeam Member asked a question 💭
Asheville, NC
January 10
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A MyMyelomaTeam Member

Yes, I had Car-Tcell Transplant in Boston, MA. Keep in mind everyone responds differently to treatment. I had a lot of side effects that I needed to stay in the hospital for 4 months. I still deal with infections, otherwise I’m in remission. I find it amazing how someone can have the Car-T and only need to be hospitalized for a week. Stay positive and hopeful!

January 10
A MyMyelomaTeam Member

Sorry to hear you had complications that required Hospitalization.

January 11
MyMyelomaTeam

Has anyone had CAR-T treatment after relapse and what was your experience? Where did you have the treatment?

CAR-T cell therapy is an approved treatment option for people with relapsed or refractory multiple myeloma who have already tried at least four other treatments. The therapy has shown promising results, with some Show Full Answer

Has anyone had CAR-T treatment after relapse and what was your experience? Where did you have the treatment?

CAR-T cell therapy is an approved treatment option for people with relapsed or refractory multiple myeloma who have already tried at least four other treatments. The therapy has shown promising results, with some people achieving significant responses.

In a recent study, about 33% of people with relapsed or hard-to-treat myeloma stayed in remission for at least five years after receiving a single infusion of CAR-T therapy. Nearly all of them reached a stringent complete response, meaning no cancer cells were detected by standard tests.

The treatment process involves:
- Collecting your T cells through apheresis
- Genetically engineering them in a lab (takes up to 3 weeks)
- Receiving chemotherapy to prepare your body
- Getting the modified cells back through an IV infusion

You'll need to stay in the hospital for several weeks after treatment and remain close to the treatment center for about a month to monitor for side effects.

CAR-T therapy is only available at certified treatment centers where healthcare providers are specially trained to manage potential complications. The most common side effects include cytokine release syndrome (84% of people in trials experienced this, though mostly mild), fatigue, infections, and neurological issues.

While not a cure, CAR-T therapy can help control cancer cells and extend life, even when other treatments haven't worked.

January 10

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