MyMyelomaTeam

Has anyone experienced optic nerve swelling that led to vision problems?

Yes, vision issues can occur with myeloma, and some MyMyelomaTeam members have shared similar experiences. One member described noticing "shadows at the outer corners of my eyes" as an early symptom, which turned out to be related to their myeloma Show Full Answer

Has anyone experienced optic nerve swelling that led to vision problems?

Yes, vision issues can occur with myeloma, and some MyMyelomaTeam members have shared similar experiences. One member described noticing "shadows at the outer corners of my eyes" as an early symptom, which turned out to be related to their myeloma diagnosis.

Myeloma can directly affect the eyes in several ways that might cause vision problems:

* Plasmacytomas (tumors made of myeloma cells) can form in or around the eyes or optic nerve, potentially causing vision issues or pain
* Hyperviscosity (thickened blood from abnormal proteins) can block blood flow to the eyes, leading to sudden vision changes
* Abnormal proteins may deposit directly in the eye
* Blood clots affecting vessels leading to the eyes can cause problems

It's really important that your husband sees both his oncologist and an ophthalmologist right away about this new symptom. Vision changes that started a month ago need prompt evaluation to determine the cause and get appropriate treatment.

While vision problems with myeloma are relatively uncommon, they can be serious and may indicate disease activity or complications that need attention.

 AI-generated responses are not a substitute for medical advice. These services are not intended to diagnose, treat, or cure any condition or disease. Always ask your doctor about specific health concerns.

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