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A MyMyelomaTeam Member asked a question 💭
West Newbury, MA

In remission. On maintenance but got pneumonia- not bad - upper lobe viral dealt with using antibiotics. Now have IVIG monthly along with Dara and Revlimid. Energy is shot

December 9, 2025
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A MyMyelomaTeam Member

I presently get IVIG monthly as my immunoglobulin levels are low and I am getting a clinical trial injection also monthly. I’ll take whatever medication will knock MM down and make me feel better. 😊

December 12, 2025
A MyMyelomaTeam Member

What is IVIG?

December 9, 2025
A MyMyelomaTeam Member

Shipmate, I’m also in remission and on IVIG monthly along with Darzalex Fastpro. My platelets are always low. I have back issues even after my 9 compression fractures being repaired with kyphoplasty, especially if I stand up or sit too long. No sense complaining this is my life now. No one can relate unless they have MM. Everyone says you look great, but little do they know. Wishing all my shipmates a very blessed day.

December 9, 2025 (edited)
A MyMyelomaTeam Member

I have been on IVIG for almost 10 years monthly. Sometimes I get a headache a day after. It has helped me tremendously.

December 9, 2025
A MyMyelomaTeam Member

I get IVIG monthly and haven't had a cold since getting infusions.

December 9, 2025

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