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Real members of MyMyelomaTeam have posted questions and answers that support our community guidelines, and should not be taken as medical advice. Looking for the latest medically reviewed content by doctors and experts? Visit our resource section.
November 24, 2025
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A MyMyelomaTeam Member

Also, my wife followed through and found the protocol, including what to take with it, and my third dose will be on Friday morning.

November 27, 2025
A MyMyelomaTeam Member

The one thing that bothers me about all this though is that these medicines are used to treat parasites in animals! Kind of weird, don’t you think? Also, I can’t find ANYTHING about dosing or frequency for what we want them for. I have NO IDEA where to even start!

November 24, 2025
A MyMyelomaTeam Member

It was my oncologist who suggested off the record that I “try” it. What does that mean? Is anybody on here using it?

November 24, 2025
A MyMyelomaTeam Member

It was my oncologist who suggested it! She knows I will not take any of Big Pharma’s chemo. And since my diagnosis in April 2024 things have been very tranquil. Apparently I have smoldering MM (SMM). I am using natural methods, mostly fruits, vegetables, and juices. I have been holding very steady on my blood tests. Next test is early February. We want to see if the iver will bring my numbers down a bit. It’s supposed to be very good at that. I feel good, bones ok, etc. So we’re testing this.

November 27, 2025
A MyMyelomaTeam Member

What does your oncologist's office say? I would think they should be your starting point and for sure don't take any until you get an answer from them.

November 27, 2025

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Phoenix, AZ