Connect with others who understand.

  • Learn from expert-reviewed resources
  • Real advice from people who’ve been there
  • People who understand what you’re going through
Sign Up Log In
Powered By
Real members of MyMyelomaTeam have posted questions and answers that support our community guidelines, and should not be taken as medical advice. Looking for the latest medically reviewed content by doctors and experts? Visit our resource section.
MyMyelomaTeam asked a question 💭
San Francisco, CA
November 11, 2025
 · 
Reactions

Answer Summary

When asked what matters most in multiple myeloma treatment, community members shared a wide range of priorities, with the most common themes... Read more

When asked what matters most in multiple myeloma treatment, community members shared a wide range of priorities, with the most common themes being quality of life, minimizing side effects, and achieving long-term remission. Several members emphasized the value of having a trusted, experienced oncology team that listens, explains all options clearly, and stays current on the latest MM research and treatments. A recurring theme was the importance of staying positive, asking questions, and being an active part of your own care decisions, with many members sharing personal journeys spanning 5 to 20 or more years.

A MyMyelomaTeam Member

I’ve been in remission for 3&1/2 years a good team

November 11, 2025
A MyMyelomaTeam Member

Long progression free survival without relapse. Six years for me now, in complete remission.

November 11, 2025 (edited)
A MyMyelomaTeam Member

Finding knowledgable teams of pa’s and dr’s

November 11, 2025
A MyMyelomaTeam Member

Ensure that you have a team experienced in myeloma…..not just in
haematology.

November 13, 2025
A MyMyelomaTeam Member

Ask the doctors any questions that you may have, then if you are satisfied with the answers trust the doctors treatment plan. As hard as it may be, keep a positive attitude.  Remember that MM is not curable at this time but is treatable.

Sent from Yahoo Mail for iPhone

November 11, 2025

Related Questions

View All
A MyMyelomaTeam Member asked a question 💭

A MyMyelomaTeam Member asked a question 💭
Lake Charles, LA

A MyMyelomaTeam Member asked a question 💭
want to share a little update about my journey. Recently I went for a CT scan of my lungs, and today the doctor explained the results to me. They found some changes in my left lung compared to before. There are areas where the lung lining looks thicker, and a small mass in the lower part of the left lung has grown a bit since my last scan. Because of these changes, the doctors want to do another test called a bronchoscopy, where they use a small camera to look inside the airways and take samples to understand it better. Hearing all this was not easy for me. It made me emotional because it feels like one thing after another. But at the same time, I am thankful that I am already under medical care and the doctors are taking steps to find out exactly what