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Real members of MyMyelomaTeam have posted questions and answers that support our community guidelines, and should not be taken as medical advice. Looking for the latest medically reviewed content by doctors and experts? Visit our resource section.
A MyMyelomaTeam Member asked a question 💭
Crestview, FL
November 5, 2025
 · 
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A MyMyelomaTeam Member

No regrets despite difficulties with side effects. No relapse yet and now I'm past 6 years since diagnosis without relapse.

November 9, 2025
A MyMyelomaTeam Member

I have no regrets although I relapsed 15 months later. My MM was aggressive. Who knows where I would be today without it.

November 5, 2025
A MyMyelomaTeam Member

Thank you for answering.

November 6, 2025
A MyMyelomaTeam Member

No point in regretting.
We followed the medical recommendation, and hoped for a good outcome.
If remission was not achieved, or lasted only a short period, or worse, experienced life threatening side effects, it's done. It's the risks we take undergoing any treatment to fight myeloma.

November 5, 2025
MyMyelomaTeam

Do some people regret having an autologous stem cell transplant?

While the search results don't specifically discuss regret, they do highlight that stem cell transplants come with significant challenges that could understandably lead to mixed feelings.

The experience can be physically and emotionally demanding. Short-term Show Full Answer

Do some people regret having an autologous stem cell transplant?

While the search results don't specifically discuss regret, they do highlight that stem cell transplants come with significant challenges that could understandably lead to mixed feelings.

The experience can be physically and emotionally demanding. Short-term side effects include:
- Nausea and vomiting
- Diarrhea
- Severe fatigue
- Mouth sores
- Infections
- Bleeding problems

One MyMyelomaTeam member shared that isolation during recovery was particularly difficult. They were separated from their children and experienced hallucinations after five weeks, describing rats running around the room and hearing babies sneeze.

The recovery process can also be isolating. Hospital stays typically last two to three weeks, and you may need to avoid activities for three to six months afterward.

However, autologous stem cell transplants remain a common treatment for myeloma because they can significantly extend remission periods. Most people with myeloma who undergo transplants receive the autologous type.

It's worth discussing your concerns and expectations thoroughly with your healthcare team before making this decision. They can help you understand what to expect and whether it's the right choice for your situation.

November 5, 2025

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A MyMyelomaTeam Member asked a question 💭
Crestview, FL