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Real members of MyMyelomaTeam have posted questions and answers that support our community guidelines, and should not be taken as medical advice. Looking for the latest medically reviewed content by doctors and experts? Visit our resource section.
November 1, 2025
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Answer Summary

Members responded to a question about taking a break from Revlimid, with many sharing that their doctors did pause the medication due to... Read more

Members responded to a question about taking a break from Revlimid, with many sharing that their doctors did pause the medication due to infections, surgery, or side effects, and that their numbers stayed stable during those breaks. A recurring theme was tinnitus and fatigue as frustrating side effects, with several members suspecting Revlimid as the cause even when doctors disagreed. The thread was also filled with emotional support, with members celebrating long-term survivors, sharing remission stories, and encouraging each other to stay strong and hopeful.

A MyMyelomaTeam Member

Wow! Only four months to get to remission, that's incredible. From your lips to God's ears that I can achieve such great success.

November 3, 2025
A MyMyelomaTeam Member

He was actually in the 3rd stage when they found his cancer. He had a stem cell transplant in June of 2021 and in October 2021 they said he was in remission. I pray that you get the results my husband has.

November 3, 2025
A MyMyelomaTeam Member

Wow! Truly amazing! That's ideal!!

November 4, 2025
A MyMyelomaTeam Member

My husband has been taken off of Revlimid completely. He has been in remission sine 2021. They did a trial for several months to make sure his numbers didn't go up.

November 3, 2025
A MyMyelomaTeam Member

After taking Revlimid for ten years, I had to have surgery, and my oncologist took me off of it so I could heal. I stayed off of it until January 2024 when I relapsed. Now I am on a different treatment. I am 86, diagnosed in 2011, and still fighting! Everyone is different, but that's my story. God is good and I am still here.

November 2, 2025

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Santa Monica, CA