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A MyMyelomaTeam Member asked a question 💭
Sterling, IL

The medicare plan I’m on prefers covering the generic Lenolidomide but it has been out of stock for months. Anyone else in this situation?

September 12, 2025
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A MyMyelomaTeam Member

The brand name for Lenolidamide is Revlimid.
One and the same.

A friend of mine was on Revlimid but her insurance switched to paying for the generic only which is Lenolidamide. She noticed a huge difference in side effects. Worse with the generic Lenolidamide. She said she preferred Revlimid but her insurance won't cover if there's a generic.
She always had a problem getting Lenolidamide so her Dr switched her to Pomalyst.

September 15, 2025 (edited)
A MyMyelomaTeam Member

I had the same problem but in the end my dr ruled.

September 21, 2025
A MyMyelomaTeam Member

The supply shortage has been going on for several years SEEMS ODD TO ME! My insurance wanted me to take Lenolidomide (generic version) but was never available so I continued taking Revlimid until December 2023 when I stopped. I'm now on a clinical trial and take neither of these drugs.

September 15, 2025 (edited)
A MyMyelomaTeam Member

But my question is: Is Lenolidomide available? Or is still on back order.

September 12, 2025
A MyMyelomaTeam Member

Really? Good to know!!

September 12, 2025

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