Connect with others who understand.

  •   Learn from expert-reviewed resources
  •   Real advice from people who’ve been there
  •   People who understand what you’re going through
Sign Up Log In
Powered By
Real members of MyMyelomaTeam have posted questions and answers that support our community guidelines, and should not be taken as medical advice. Looking for the latest medically reviewed content by doctors and experts? Visit our resource section.

The other day, I was told I am somewhat of a hypochondriac. Having the symptoms of MM and the treatment is absolutely not imaginary. Is the diarrhea or constipation caused by the treatment imaginary? Is the MRI showing degradation and pain in the spine caused by MM imaginary? Is the nerve damage that causes symptoms like numbness or tingling in hands and feet (peripheral neuropathy) imaginary? Is the extreme tiredness that does not improve with rest imaginary? Is the unintentional loss of weight… read more

August 26, 2025
 · 
Reactions

Answer Summary

Members rallied around the question of how to respond when a multiple myeloma patient is called a hypochondriac, with the overwhelming message... Read more

Members rallied around the question of how to respond when a multiple myeloma patient is called a hypochondriac, with the overwhelming message being that MM symptoms and treatment side effects are very real and not imaginary. Many community members shared that close friends and family often struggle to understand invisible illnesses, and several noted they have stopped discussing their health with certain people or simply say they are fine to avoid hurtful responses. A recurring theme was the importance of surrounding yourself with supportive people, leaning on faith, and finding comfort in a community that truly understands the daily challenges of living with MM.

A MyMyelomaTeam Member

some people just don't stop to think outside themselves.....till it happens to them.And that was RUDE of them!

September 6, 2025 (edited)
A MyMyelomaTeam Member

Gaslighting! I would say something snappy, like "Oh, you seem to know a lot about hypochondria! When were you diagnosed?", then I'd walk away. Unless it was my boss, that is! πŸ˜†
What matters is what you know. If someone made hurtful comments like that, we would never speak again - regardless of what the relationship is. Align yourself with compassionate people - you deserve that at the very least.

January 9
A MyMyelomaTeam Member

Robert, people are so narcissistic and self centered now. Don't waste another minute of your time and energy on this person. They probably don't even know what multiple myeloma is. They won't take the time to find out. I am very careful who I talk to about my health now. I hope you feel safe here. Big hugs your way πŸ€—

August 26, 2025
A MyMyelomaTeam Member

Hi RobertMonteiro, you do not have proof to anyone that you have an illness. Stay away from negative vibes. Negative will always talked your strength away that is pure evil. Stay positive young man. She sees that you are paining and does not feel good only you can feel your pain. You told what you are going through that should have been enough. Empathy should have been shown and not to be judgemental. Put yourself around joyful and positive people. Good attitude and been positive is the key. Try keep moving if it just front and back in the house.God bless.πŸ™πŸΌ

September 5, 2025 (edited)
A MyMyelomaTeam Member

Tell them - They should hope they never get to know anything about MM

August 26, 2025

Related Questions

View All
A MyMyelomaTeam Member asked a question πŸ’­
Hudsonville, MI