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Real members of MyMyelomaTeam have posted questions and answers that support our community guidelines, and should not be taken as medical advice. Looking for the latest medically reviewed content by doctors and experts? Visit our resource section.
July 25, 2025
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A MyMyelomaTeam Member

I hope you can find the help you need to get the car T treatment.
If you can’t get it through Part B, may you can get those additional 8 hours a day from an alternative organization that helps people in need of care. Maybe a House of Worship or a Foundation. Wishing you the best of luck maki may that happen!

July 31, 2025
A MyMyelomaTeam Member

Thank you

July 30, 2025
MyMyelomaTeam

CAR-T cell therapy works best when using your own T-cells, not donated ones. The process involves collecting your personal T-cells, modifying them in a lab, and returning them to your body to fight the myeloma cells.

If Talquetamab is currently working well for you, it may be best to continue with this treatment that's Show Full Answer

CAR-T cell therapy works best when using your own T-cells, not donated ones. The process involves collecting your personal T-cells, modifying them in a lab, and returning them to your body to fight the myeloma cells.

If Talquetamab is currently working well for you, it may be best to continue with this treatment that's showing positive results. However, if you do consider CAR-T therapy again, studies show promising results when using your own cells:
- 3 out of 4 people show reduced cancer signs
- 1 out of 3 people achieve complete response
- Many patients who failed other treatments have responded well

The decision to switch treatments should be made with your healthcare team, considering your current response to Talquetamab and overall treatment history.

July 25, 2025
A MyMyelomaTeam Member

I am inclined to go back to autologous car T cell therapy. I can no longer tolerate the side effects from the talquetamab, I am having problem eating and swallowing due my dry mouth and loss of taste. My entire skin is peeling and itches and very sensitive to sunlight. My only challenge is satisfying the requirement of able to provide 24/7 caregiver care for up to 4 weeks in order for my oncologist to place me in the car T cell therapy. My medicaid care manager said the can only provide 16 hours per day,
Do anyone know any Home Health agency that will accept medicare part B to provide the caregiver care for the remaining 8hr needed for me to be able to get the car T cell treatment?
Thanks and wishing everyone continued blessings in your unique method of dealing with this disease.

July 30, 2025

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