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Real members of MyMyelomaTeam have posted questions and answers that support our community guidelines, and should not be taken as medical advice. Looking for the latest medically reviewed content by doctors and experts? Visit our resource section.
A MyMyelomaTeam Member asked a question 💭
Blountville, TN

Does anybody have any suggestions on what I can get to help with the neuropathy in my toes and fingers. I want something that will work.

July 21, 2025
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A MyMyelomaTeam Member

Hi Sandra! I’ve had neuropathy for years, and I’ve tried different creams and meds. Finally, I was put on Lyrica. Although, I take 200mg. three times a day. I am very comfortable. I hope this helps.

July 21, 2025
A MyMyelomaTeam Member

Well, after 2 weeks of the compound of diclofenac, Lidocaine and Ketamine rub in, I have less neuropathy in toes , feet and ankles. I will continue with this.

July 25, 2025
A MyMyelomaTeam Member

I use a heavy duty massaging tool for my feet. I do Pilates 4-5 times a week and I walk about 3 miles a day. All that helps put tension on my feet. When dexamethasone was removed from my treatment, I began to get more feeling in my toes. My fingers were never affected. I wrote about this on my blog: https://www.reframingcancer.com/these-feet-are-.... Good luck!

These Feet Are Made for Walking – And That’s Just What They’ll Do
These Feet Are Made for Walking – And That’s Just What They’ll Do
July 24, 2025
A MyMyelomaTeam Member

Alpha Lipoic acid is recommended y Hematologists. Also B complex vitamins. One way to get B vitamins is to take Nutritional Yeast. I take 2 teaspoons a day. I like Bob’s RedMill brand because it mixes well in juice or dairy and isn’t bitter.
Paula🌹

July 21, 2025
A MyMyelomaTeam Member

I’ve taken them all. The following is the best I have found: methadone 10mg, lyerica 60 mg, Wellbutrin 450 mg. I still feel it but it does not hurt. I can sleep with blanket over my feet. I can drive a car and workout at the ymca.

July 21, 2025

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