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Real members of MyMyelomaTeam have posted questions and answers that support our community guidelines, and should not be taken as medical advice. Looking for the latest medically reviewed content by doctors and experts? Visit our resource section.
June 29, 2025
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A MyMyelomaTeam Member

Hi Jamie, and I’ll MM patients out there. I was all worked up for a stem cell transplant and the last minute decided not to do it. The transplant doctor was very upset with me but shortly after that I went into remission !

June 11
A MyMyelomaTeam Member

Hi! Why do a SCT when you’re MRD negative? If you gone through introductory therapy to achieve MRD negativity, perhaps just going into maintenance mode would be a better option for you and your body? You might research SCT vs maintenance and see if the remission timeline is that much different. I thinks it’s 50 months vs 30 months, but that doesn’t take into account the long recovery period for SCT. SCT used to be the gold bar therapy after induction, but with all the newer effective drugs and therapies there’s a large group of MM patients that forgo the procedure. I spoke with my Dana Farber Dr in Boston about this, and she wasn’t pushing SCT anymore. I did harvest my Stem Cells and froze them, which seemed like a reasonable thing to do.

September 30, 2025
MyMyelomaTeam

Being MRD-negative means that when testing 1 million bone marrow cells, no cancerous cells were detected. While this is a positive indicator, it doesn't guarantee there are absolutely no myeloma cells in your body - just that they are below detectable levels. Research shows that people who are MRD-negative have a lower Show Full Answer

Being MRD-negative means that when testing 1 million bone marrow cells, no cancerous cells were detected. While this is a positive indicator, it doesn't guarantee there are absolutely no myeloma cells in your body - just that they are below detectable levels. Research shows that people who are MRD-negative have a lower likelihood of relapse compared to those with detectable myeloma cells after treatment. However, it's important to note that doctors are still developing guidelines on how to best use MRD results for making treatment decisions. This is a complex medical decision that should be discussed thoroughly with your healthcare team. They can evaluate your specific situation, considering your MRD status along with other factors, to help determine the optimal timing for both your hip replacement and stem cell transplant.

June 29, 2025

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A MyMyelomaTeam Member asked a question 💭
Chicago, IL