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Real members of MyMyelomaTeam have posted questions and answers that support our community guidelines, and should not be taken as medical advice. Looking for the latest medically reviewed content by doctors and experts? Visit our resource section.
A MyMyelomaTeam Member asked a question 💭
California, CA
June 5, 2025
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A MyMyelomaTeam Member

It may mean you are not Smoldering anymore. Are you seeing a Hematologist who only Specializes in Multiple Myeloma? If you are not, you may not be diagnosed correctly or treated with up to date treatment. MM Specialists are rare, so you may have to drive a distance to find one or you can ask if they will talk to you on FaceTime, after they get all your records. They will then partner with your local Hematologist for your treatment and on going healthcare. IgA tends to be higher risk. I am IgA Kappa. Kappa can build up and affect my kidneys. Organ damage is common. Have you had a bone marrow biopsy, CT scan or Pet Scan?
Paula🌹

June 5, 2025
MyMyelomaTeam

An elevated IgA level can indicate that myeloma cells are producing abnormal antibodies. In multiple myeloma, plasma cells become cancerous and produce large quantities of abnormal antibodies that don't function correctly, unlike healthy plasma cells that make antibodies to fight infections. Your healthcare team will Show Full Answer

An elevated IgA level can indicate that myeloma cells are producing abnormal antibodies. In multiple myeloma, plasma cells become cancerous and produce large quantities of abnormal antibodies that don't function correctly, unlike healthy plasma cells that make antibodies to fight infections. Your healthcare team will monitor these levels along with other factors to track your disease progression and adjust treatment plans as needed. It's important to discuss any changes in your protein levels with your doctor, as they will consider your complete medical history and other test results when interpreting these values.

June 5, 2025
A MyMyelomaTeam Member

Please keep me posted. I pray you find a good Hematologist/Oncologist in your area.
Paula🌹

June 12, 2025
A MyMyelomaTeam Member

Veronica,
3164 is a really high number. I think you would be happier seeing a MM Specialist than ending up in the ER with organ failure. That’s what I have read from too many peoples posts. Stop worrying and get answers. Make sure to take someone with you, so they can take notes.
Paula🌹

June 6, 2025
A MyMyelomaTeam Member

I’m also Kappa and high risk. Have not started treatment, more labs in 2 months to see if IgA continues to increase. I don’t have an MM specialist, but I do have several phone numbers for some near by. I will reach out to someone very soon. Thank you! I know the importance of the test numbers and I am worried .

June 5, 2025

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A MyMyelomaTeam Member asked a question 💭