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A MyMyelomaTeam Member asked a question 💭
Hollis AK

I saw there is a test that takes the place of bmb.
I had it written down and now I can't locate the notes I had it in.

June 3, 2025 (edited)
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A MyMyelomaTeam Member

Going for another bmb means going to another State, but the test can be done here in AK. I was looking for the name to present to my oncologist tomorrow.He may know, but just in case. ....Thank you AI!

June 3, 2025 (edited)
A MyMyelomaTeam Member

Part 2:

At the FB Site - BEATING MULTIPLE MYELOMA WITH A NATUROPATHIC APPROACH, I found plenty that helped me learn. I Post there as JB JB (an old FB account I had that did not require a phone number). I joined that site 2 years ago and read everything I could find. I have no medical background but I can read and connect the Dots - I've come to know MM as well as all of my excellent Oncs & Docs that have helped me during these past 4 years. Since I have Medicare and a Supplemental Policy, I've been able to order up an endless array of Tests. I provide my Onc with the CPT Code of items I'd like to add to my Monthly Labs - he's always fine to add them. I've told my local Onc, they're Treating MM Wrong - he understands my point of view and supports me. I've told my John Hopkins Consulting Onc, they're Treating MM Wrong - he said, "They Don't Reduce a Person's Treatment Meds if they Respond Well, they simply Increase it if they Don't".

Continued use of the excellent Meds that Cure Us, eventually become the Monster that Kills Us - I've watch it happen to a friend when it never had to be.

Sadly, MM Treatment is extremely Big Business. SCTs are a $3 billion a year Industry. People are getting to MRD Negative but are still being told they Must Get a SCT. It takes an informed Patient to Say No - My hopes for a Book is to Provide that foundation of info that might help others recover as I have.

June 6, 2025 (edited)
A MyMyelomaTeam Member

wrong site.....ok. I'll try again. Thank you
I do want to thank you for all the information. My appt. for the oncologist consult is next Tues. morning. I'll present my case , see how he responds and go from there. A bmb and the travel to, is very expensive for me, so I am hoping this test will actually be available through Dr. Wong. Cross your fingers for me.

June 6, 2025 (edited)
A MyMyelomaTeam Member

The SPEP is not sensitive enough. Once it’s at No MSpike, then the Blood Sample clonoSEQ will tell you if you have Any Cells per Million. If the clonoSEQ says Zero per Million then you’re at MRD Negative (10 -6), and No Active MM Cancer

June 5, 2025
A MyMyelomaTeam Member

Dorothy; My protein electrophoresis has and still is saying that there is no detectable abnormal protein in my blood ( for most of the years I've had MM ). I still don't understand how that's possible and I still have MM. Lots of research and questions are going to be happening from this ...patient.

June 5, 2025

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