Hi Steven, I have been taking Lenalidomide (Revlimid) for about 18 months. So far I have not noticed many side effects except for occasional diarrhea but I take a medication to combat that. Otherwise I have not seen other issues. And at the beginning I was very afraid to start it too. But I have been lucky. Have faith!

Patti thanks for the info I'm like you never been sick in 73 years just found it MM in May this year starting revlimd and some more stuff lol . Hope I do well , good luck with your treatment. Keep in touch

Hi Steven, I was on Revlimid back in 2017. I had to take it at night. It made me dizzy and tired. The doctor had to adjust my dose a few times. I had some infections. I had loose stools from Revlimid. After 3 months, the specialist decided Revlimid wasn't working that great for me, and my counts stayed low. He switched me to Pomalyst, which I still take today. I hope you are able to adjust to Revlimid. It does work well on myeloma, at least for the majority of people.

Hi Steven, I was diagnosed with MM (high risk) in April, 2022 and started taking Revlamid, Darzalex, Acyclovir, and Dexamethasone, considered to be the Gold Standard of treatment. In late 2023 I went to Moffitt Cancer Center for a bone marrow transplant, that did not work for me, I couldn’t produce enough white blood cells. Today I was informed that I am no longer in remission and my treatment will change to different drugs. I hated taking Revlamid but was told it was keeping me alive! I did have some side effects but overall I tolerated the drug very well. I try to keep a positive attitude and I don’t anticipate having problems with the different drugs. I’m a 74 year old female and was pretty much never sick a day in my life! So the MM diagnosis was like a brick between my eyes!! Just remember that we are all different and these drugs affect each of us differently. I had swollen ankles for a while till we figured out that I was not getting enough protein in my diet so I drink a high protein drink every day and that helps. So watch your diet, you can get a lot of what you need in what you eat. Steven, I wish you luck in your journey, not something any of us wanted to do. Live each day with all that you have and to the fullest.