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Real members of MyMyelomaTeam have posted questions and answers that support our community guidelines, and should not be taken as medical advice. Looking for the latest medically reviewed content by doctors and experts? Visit our resource section.
A MyMyelomaTeam Member asked a question 💭
Lake Charles, LA

I had been on Xgeva for bone building yesterday doctor said going to change that to Zometa. After reading both can cause ONJ not sure I want either of them cause I’m 71 stage 3 IGG Kappa High risk relapsed and do not want any part of ONJ
They pulled a fast one on me before I had time to research the actual side effects of this new drug. Doctor said as needed closely monitored but my aunts husband had prostate cancer was on a bone building shot she forgot name but is looking up for me
Anyway… read more

May 16, 2025
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A MyMyelomaTeam Member

I was given Xgeva monthly after my SCT for 16 months. After I relapsed my current treatment is a clinical trial and my oncologist didn't want me to have any bone strengtheners. It has been 17 months since my last Xgeva shot and my bones are still very strong.

May 17, 2025
A MyMyelomaTeam Member

Praise God for that!!!
Everyone is different I guess

May 16, 2025
A MyMyelomaTeam Member

I’ve been treated with zometa during treatment for breast cancer, more recently for MM. I discussed it with my dentist extensively who has only seen one case of it in a patient who had deplorable Oral health. The consensus is to get your mouth in good shape prior to Zometa. Extractions, root canals and invasive treatments are to be avoid.

June 21, 2025
A MyMyelomaTeam Member

Both oncologists took me off all calcium due to high risk of hypercalcemia and my high calcium level 12.5 zometa was used one time to bring down my calcium now 8.3 and it was successful so no more zometa.

May 22, 2025
A MyMyelomaTeam Member

Angie,
Vitamin D3 helps the bones absorb calcium and Vitamin K tells the calcium to go to the bone. I think this is one of the most important supplement for MM. I have been on this site for 4-5 years, and in that time have read too many horror stories about osteonecrosis.
Paula🌹

May 21, 2025

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