Connect with others who understand.

  • Learn from expert-reviewed resources
  • Real advice from people who’ve been there
  • People who understand what you’re going through
Sign Up Log In
Powered By
Real members of MyMyelomaTeam have posted questions and answers that support our community guidelines, and should not be taken as medical advice. Looking for the latest medically reviewed content by doctors and experts? Visit our resource section.
A MyMyelomaTeam Member asked a question 💭
Maidstone Kent England
May 15, 2025
 · 
Reactions
A MyMyelomaTeam Member

I'm trying not to think about getting another cancer. I know I'm at risk. I keep up with my follow-up appointments and get my routine cancer screenings.

May 16, 2025
A MyMyelomaTeam Member

Usually, until disease progression or intolerance. It varies. Some people are in clinical trials. They take maintenance for a set time. Some with standard risk myeloma that achieve sustained mrd negativity, are allowed to go off maintenance and be monitored. I personally have been on Darzalex and Pomalyst since 2017. I'm still mrd positive. So I will probably be on something for the duration. I gave high risk genetics.

May 15, 2025 (edited)
A MyMyelomaTeam Member

I know about worrying about secondary cancers. Geez they give you one thing for the cancer, then you get something else for the side effects never ending cycle.
I don’t know about all of you but, I sure get tired of doctor appointments and medications but what the alternative is I guess we just trudge on.

May 16, 2025
A MyMyelomaTeam Member

Most everyone is assigned a maintenance dose helps mm from coming back prolongs remission period.

May 16, 2025
A MyMyelomaTeam Member

I also worry about revilmid causing secondary cancer. My doc says it's best to stay on it and I have been since SCT in 2018. He does emphasize and I stay up on yearly mammograms and Colonoscopies.

May 16, 2025

Related Questions

View All
A MyMyelomaTeam Member asked a question 💭
Breckenridge, CO