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A MyMyelomaTeam Member asked a question 💭
Venice, FL
March 30, 2025
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A MyMyelomaTeam Member

Thank you, Eileen

March 30, 2025
A MyMyelomaTeam Member

I am high-risk, IgA kappa, Multiple Myeloma.
Had my stem cell transplant Oct.04,2023. Because we live nearby the transplant center, mine was considered outpatient.
The harvest and transplant were done in the center. I got to go home and sleep in my own bed afterwards. For two weeks following the transplant, I had to go back to the cancer center and check in every day. Had to turn in a report each day too; a record of what/how much, I ate and drank, my body temperature at intervals, my bathroom habits.
Had vitals and lab work done and was infused or given orals for anything I was low on.
It really wasn’t bad at all.
The best part was sleeping in my own bed.
If my temperature spiked to 100.4F I was to check in to the hospital to be monitored for infection. It did. Friday, Oct.13, I checked into the hospital.
I was given antibiotics, platelets and fluids. Had an incredibly sore throat. My hair started falling out by the handfuls. I was there about five days.
It was there I engrafted.

About 100 days post transplant I had another bone marrow biopsy. I was disappointed that I have not achieved remission and still remain MRD positive.
I am scheduled for my sixth bone marrow biopsy in August, 2025.

March 30, 2025 (edited)
MyMyelomaTeam

Based on experiences shared by MyMyelomaTeam members, stem cell transplants today can be done either as an inpatient procedure requiring a 2-3 week hospital stay, or as an outpatient procedure with daily monitoring. During the hospital stay, patients often experience fatigue, nausea, diarrhea, and loss of appetite as common Show Full Answer

Based on experiences shared by MyMyelomaTeam members, stem cell transplants today can be done either as an inpatient procedure requiring a 2-3 week hospital stay, or as an outpatient procedure with daily monitoring. During the hospital stay, patients often experience fatigue, nausea, diarrhea, and loss of appetite as common side effects. One MyMyelomaTeam member shared their transplant experience from years ago, noting they were kept in isolation for six weeks until their blood counts improved. They recommended bringing entertainment like books, music, and movies, though they mostly slept during recovery. They followed a special antibacterial diet of well-cooked meats and certain fruits/vegetables, avoiding fresh produce and restaurant food until their counts improved.

The isolation period can be challenging emotionally, but medical teams now provide various medications to help manage side effects, including anti-nausea medications, antibiotics, and treatments to help blood cell growth. Don't hesitate to ask for medication if you're experiencing discomfort.

March 30, 2025

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