Connect with others who understand.

  • Learn from expert-reviewed resources
  • Real advice from people who’ve been there
  • People who understand what you’re going through
Sign Up Log In
Powered By
Real members of MyMyelomaTeam have posted questions and answers that support our community guidelines, and should not be taken as medical advice. Looking for the latest medically reviewed content by doctors and experts? Visit our resource section.

I'm worried about the potential for developing osteo-necrosis, since I get Zometa infusions a couple of times a year. When I called my oncologist to ask if it would be okay for me to have the surgery, he said it's been 6 months since your last infusion, it should be fine. There was a guy in the blood cancer support group we attended (pre pandemic) who had to have a couple of teeth pulled--he did get osteo-necrosis from that, and it had been 10 years since his last Zometa infusion. Does anyone… read more

March 29, 2025
 · 
Reactions
A MyMyelomaTeam Member

You made me realize that I need to build up my bones!!!

March 30, 2025
A MyMyelomaTeam Member

Judy,
When I was first diagnosed with MGUS, I was also diagnosed with osteoporosis at -3.6, which is severe. I was told I needed Zometa, but I have other health concerns and looked into natural ways to strengthen my bones. It’s been 5 years and I am doing well. I take Calcium & magnesium (MRM Bone Maximizer III) and extra D3 & K2 and collagen. I figured if MM breaks down the bones, I better build them up faster.
Paula🌹

March 30, 2025
A MyMyelomaTeam Member

Judy,
I was taking calcium and magnesium too, but it wasn’t helping. I wasn’t taking D3 & K2 which fell in to go to the bones instead of the arteries. I had a heart attack. Now with the D3 & K2 and collagen, I am doing better. I also changed my calcium supplement to MRM Bone Maximizer III (with MK-7) and take 4 capsules a day. My blood calcium has even come down.
Paula🌹

March 31, 2025
A MyMyelomaTeam Member

It’s too late to avoid Zometa. I had already been diagnosed with osteoporosis years before I was diagnosed with MM. I had refused bisphosphonates because I was aware of the potential side effects. When I was diagnosed with MM, I felt I didn’t have a choice. I had already been taking extra calcium supplements with MK-7. I had also been walking 5 miles per day for weight bearing exercise. Now, fingers crossed, I will heal without developing osteo-necrosis.

March 30, 2025
MyMyelomaTeam

Your concern about osteonecrosis is valid. Osteonecrosis of the jaw (ONJ) is a known risk associated with bisphosphonates like Zometa, occurring in approximately 3-11% of people taking these medications. The risk increases with longer duration of use. Given your recent shoulder surgery and the timing of only 6 weeks Show Full Answer

Your concern about osteonecrosis is valid. Osteonecrosis of the jaw (ONJ) is a known risk associated with bisphosphonates like Zometa, occurring in approximately 3-11% of people taking these medications. The risk increases with longer duration of use. Given your recent shoulder surgery and the timing of only 6 weeks post-operation, it would be prudent to discuss your concerns thoroughly with your oncologist during your Monday appointment. While your doctor previously noted the 6-month gap as being sufficient before surgery, the healing process after surgery is equally important. Consider asking about temporarily postponing the Zometa infusion until you've had more healing time from your shoulder replacement. Watch for any signs that could indicate complications, such as unusual swelling, tenderness, or problems with healing in the surgical area. These symptoms should be reported to both your oncologist and orthopedic surgeon right away.

March 29, 2025

Related Questions

View All
A MyMyelomaTeam Member asked a question 💭
Somers, CT

A MyMyelomaTeam Member asked a question 💭
Santa Ana, CA

Continue with Facebook
Continue with Google
By joining, you accept our Terms of Use, and acknowledge our collection, sharing, and use of your data in accordance with our Health Data and Privacy policies.
Already a member? Log In