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Real members of MyMyelomaTeam have posted questions and answers that support our community guidelines, and should not be taken as medical advice. Looking for the latest medically reviewed content by doctors and experts? Visit our resource section.

I am back on Steriods again, Iv 20 MG once a month and 4 MG Steriods 4 times a week oral plus Darzalex shot in stomach. M spike is .2 and Beta 2 Microglobulin is down to 3.37. Hard to figure when I have severe Osteoporosis and I get Zometa every month and Steriods eat up your bones.

March 13, 2025
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A MyMyelomaTeam Member

Hi Jeafra10 I am so happy for the encouragement that your Doctor gave you. It is good to hear the love to let you know that everything is going great .

March 14, 2025
A MyMyelomaTeam Member

I was supposed to get IVIG my last visit as well. It wasn't available and I didn't want to wait all day for the delivery. So we will get it next visit 🥰

March 14, 2025
A MyMyelomaTeam Member

I agree, but since my visit this week my doctor got after me for worrying about all these numbers. Like my IGG is down to 589 I am suppose to have a IVIG if down under 600 but no one called so I guess I will hear next month. I know I am going on 5 years with MM and I am still here so I shouldn't complain and feeling pretty good.

March 14, 2025
A MyMyelomaTeam Member

We aren't supposed to give medical advice. I honestly couldn't take that much dexamethasone. I'm also on Darzalex with Pomalyst. They let me drop the dexamethasone. Too many side effects for me. I would also ask if that m spike is from Darzalex.

March 14, 2025
A MyMyelomaTeam Member

Since January 2021.

March 14, 2025

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