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Isn't there a name of a type of MM that takes into account that there is no change in Protein Electrophoresis, just otherfactors?
It depends on the type of Multiple Myeloma. I have Kappa Light Chain Multiple Myeloma, with no M spike. People with light chain myeloma don’t have the same characteristic spike of M protein as many other types of myeloma, which makes the disease more difficult to detect. A blood or urine test will show increased levels of free light chains and, more importantly, an abnormal ratio of kappa to lambda light chains.
Get a blood sample clonoSEQ test to know if your in Complete Remission - it's accurate to 10 -6, no Cancer Per Million Cells Tested. My John Hopkin Consulting Onc to me a year ago that they now use this blood sample clonoSEQ test to track the status of their patients, without the need for annual BMBs.
@A MyMyelomaTeam Member Here's another great video from Health Tree University that explains the different types of tests for MM. It also explains about light chains and I think briefly touches on non-secretory. Maybe you could ask your doctor about an SPEP and FLC? Hope this helps! ☀️🌻
https://youtu.be/2NtxZkAHJgE?si=f1MRRxzVoeU7xT3u
Yes, it's possible to have multiple myeloma even without detecting an M spike through protein electrophoresis. While most people with myeloma have M protein in their blood or urine, doctors use several other tests to make a diagnosis, including:
- Imaging tests
- Genetic tests
- Bone marrow biopsies
- Additional Show Full Answer
I have a list to hand him in May......rather, when I speak to him on the phone. I have to remember to actually ask...from the list 😬
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