Connect with others who understand.

  • Learn from expert-reviewed resources
  • Real advice from people who’ve been there
  • People who understand what you’re going through
Sign Up Log In
Powered By
Real members of MyMyelomaTeam have posted questions and answers that support our community guidelines, and should not be taken as medical advice. Looking for the latest medically reviewed content by doctors and experts? Visit our resource section.
A MyMyelomaTeam Member asked a question 💭

1) How long have you been off All MM Meds

2) What Treatment got you to Negative

3) What was your original MM Diagnosis

4) Any Relapses along the way

Thanks

February 3, 2025
 · 
Reactions
A MyMyelomaTeam Member

I haven’t been on meds for over 2 years. I had RVD and a SCT 10 years ago. So far so good!
I was IGG Kappa

February 7, 2025
A MyMyelomaTeam Member

2017 diagnosis, stage 3, radiation, 6 months conditioning chemo, Rev, Dex, Kyprolis,
2018 ASCT got me to 5%, 4 months consolidation chemo got me under 3%.
2023 relapse, radiation, chemo
2024 relapse/refractory, radiation, chemo, marrow saturated, spinal fluid cancer, brain poisoned by calcium, given 6 months to live. Lots of chemo later and learning how to walk and I'm on the list for CAR-T .
October 2024 CAR-T was a success and I'm 0% MRD, now I just need my marrow to recover which has been a challenge. No more chemo makes it all worth it.

February 3, 2025
A MyMyelomaTeam Member

Same here, no relapse. If anyone is bothered by bone or muscle
pain i just started drinking this 10 mushroom coffee and... and I'm not a coffee drinker but man has it made a difference...

March 24, 2025
A MyMyelomaTeam Member

AMAZING... it's folks like you who keep me hopeful on longevity...

February 7, 2025
A MyMyelomaTeam Member

I never had the MRD test but have been off all MM meds for 21/2 years. I had RVD and SCT then maintenance rev for 8 years.

February 3, 2025

Related Questions

View All