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Real members of MyMyelomaTeam have posted questions and answers that support our community guidelines, and should not be taken as medical advice. Looking for the latest medically reviewed content by doctors and experts? Visit our resource section.
A MyMyelomaTeam Member asked a question 💭
Florham Park, NJ
December 12, 2024
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A MyMyelomaTeam Member

I'm considered high risk. MM was detected Feb 2021. I had a SCT July 2022 and fall of 2023 I came out of remission as Revlimid wasn't working for me. January 2024 I was selected to start a clinical trial and within 6 weeks I was considered in remission and still am. I'm on a immunotherapy, feel much better, and hope to never have to do chemo again.

Good luck to you........................

December 12, 2024 (edited)
A MyMyelomaTeam Member

Great news!

Never give up!

December 12, 2024
A MyMyelomaTeam Member

I do. IGA KAPPA with TP53 deletion. I'm currently going to have CAR-T on January 8th. Diagnosed October 2023. This will be my 7th line of treatment.

December 12, 2024
A MyMyelomaTeam Member

I was diagnosed in the fall of 2018 with stage 1 ,high risk FISH characteristics IgA Kappa light chain T(14,20)(q32,q12) deletion 13,17 translocation 14. I am currently in continuous response remission after RVD protocol, to RV to Revlimid maintenance. I did not have a Stem cell transplant. However there are so many different types and circumstances for multiple myeloma. Therefore when comparing cases many details are required as multiple really describes this insidious but treatable cancer. My story page has more information.

Hope all goes well for you.

December 12, 2024
MyMyelomaTeam

High-risk multiple myeloma refers to cases where the disease progresses more aggressively or is harder to treat due to specific genetic abnormalities or other factors. If you or someone you know has high-risk myeloma, it's essential to work closely with a healthcare team to tailor treatment options. Sharing experiences with Show Full Answer

High-risk multiple myeloma refers to cases where the disease progresses more aggressively or is harder to treat due to specific genetic abnormalities or other factors. If you or someone you know has high-risk myeloma, it's essential to work closely with a healthcare team to tailor treatment options. Sharing experiences with others in similar situations, like on platforms such as MyMyelomaTeam, can also provide support.

December 12, 2024

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