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In addition to Kappa Light Chain MM, I’ve been diagnosed with AL, Light Chain Amiloidosis. Does anyone else have this additional condition?

A MyMyelomaTeam Member asked a question 💭
Bonney Lake, WA

What type of additional treatment is used?

December 8, 2024
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Reactions
A MyMyelomaTeam Member

Hi Robert,
My Sister-in-law has this Amyloidosis. Regular monitoring only of organs for functions and deposits is currently required. Keep a close eye and go from there as required. All the best, 🍀

December 8, 2024
A MyMyelomaTeam Member

Robert, I'm sorry to hear about your amyloidosis. I don't have amyloidosis, but Kyprolis did not work on my myeloma at all.
I hope they do try Darzalex. I have had really good results with Darzalex and Pomalyst. Wishing you the best outcomes 🥰

December 9, 2024
MyMyelomaTeam

AL amyloidosis often occurs alongside light chain multiple myeloma (kappa or lambda). Both conditions are treated with similar therapies, but AL amyloidosis may require additional focus on managing organ damage caused by amyloid deposits. Treatments can include chemotherapy, proteasome inhibitors, immunomodulatory drugs Show Full Answer

AL amyloidosis often occurs alongside light chain multiple myeloma (kappa or lambda). Both conditions are treated with similar therapies, but AL amyloidosis may require additional focus on managing organ damage caused by amyloid deposits. Treatments can include chemotherapy, proteasome inhibitors, immunomodulatory drugs, and stem cell transplants. It's essential to work closely with your healthcare team to tailor treatment to your specific needs.

December 8, 2024
A MyMyelomaTeam Member

I guess I thought you had already been on Darzalex? Please keep me updated🥰

December 9, 2024
A MyMyelomaTeam Member

I'll keep you and this team posted. All this medication ran up my lipids levels. I just was placed on 20mg of Rovastatin. To go from being "healthy" and taking only 10 MG of BP medication that started 5 years ago to all this is a challenge.
I will continue to keep you and this team in my Daily prayers.
God bless us all

December 9, 2024

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