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A MyMyelomaTeam Member asked a question 💭
Warrenton, VA

I’m having some issues opening jars and water bottles sometimes, the good thing I can still grip a glass to drink but I’m wondering if there’s exercises to strengthen or is it something else?

November 13, 2024
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A MyMyelomaTeam Member

Planet Fitness is free to Seniors with Silver Sneakers or similar. In June 2022, after 7 months of Treatment and ending up in a walker and transport chair, I stumbled in (quite unstable on my feet) and spent 3 months, 7 days a week rebuilding myself.

It's continued to take time but I've regained everything and more. At 71, I'm lifting 38lb bags of bottled water (we only drink reverse osmosis water - 36 bottles from Wegmans in a pack) and I'm back to hitting 200+ yard drives at TopGolf - spending 2 to 3 hours, 3+ days a week.

We can fight back and regain our strength but it takes a real effort and it's totally worth it.

November 13, 2024 (edited)
A MyMyelomaTeam Member

I do exercises....well don't think vigorous; it's more like stretches, but they do help...and deep breathing, that I call an exercise.

February 4, 2025
A MyMyelomaTeam Member

I feel the same way and I do daily exercises.

November 25, 2024
A MyMyelomaTeam Member

@A MyMyelomaTeam Member

It would be easier if I do stop the Ritalin orders. Being a controller Med, I had to get an order through my GP every month and I had to check that my Walgreens had the inventory - every month, it was an effort for both of them.

If I do continue, I'll get the 10mg 3x daily, cut them in half and take 2 @ 5mg daily - making one month's order last 90 days. Due to the Med, they can not prescribe more than a month at a time but this would stretch it to 3 months between orders.

It's my preference to find Natural Supplements and/or Foods, even though they'll cost me Out-of-Pocket, vs the generic Ritalin is covered by my Medicare & Supplemental.

When I was taking oxycodone, the Ritalin was extremely helpful. I suspect, as I "Work-the-Problem", I'll end up just fine without the Ritalin.

There's some additional Supplements - L-Tyrosine, which is a Precursor to Dopamine and L-Tryptophan, which is a Precursor to Serotonin. Not sure if I'm going to try these but they may prove to be helpful as well.

My whole life, I was never taking prescription Meds except for a very infrequent sinus/respiratory infection. It's taken 3 years but it's looking like I'll be able to get back to that mode, just like before.

November 15, 2024
A MyMyelomaTeam Member

@A MyMyelomaTeam Member,
Work on the farm probably gives you lots of exercise.

November 14, 2024

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