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Real members of MyMyelomaTeam have posted questions and answers that support our community guidelines, and should not be taken as medical advice. Looking for the latest medically reviewed content by doctors and experts? Visit our resource section.
October 16, 2024
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A MyMyelomaTeam Member

I have aggressive myeloma however I responded well with induction and I had a SCT and have been MRD negative for 3.5 years now and just take Revlimid I do have minor side effects like fatigue and toes are numb . Some types of myeloma respond well without SCT so it’s best to consult your myeloma specialist
Best wishes

October 17, 2024
A MyMyelomaTeam Member

Paul, not all patients have to have a transplant. Some patients with standard risk myeloma are getting to mrd negativity with induction. They are able to go straight to maintenance. I needed a transplant. I did not have a great response to induction and I'm still not mrd negative. But I'm doing okay 🥰

October 17, 2024
A MyMyelomaTeam Member

You can't do that Paul. Knowledge is power. I got on my patient portal. Read all my notes and looked up things I didn't understand. We must advocate for ourselves. We can't if we don't know what is going on.

October 20, 2024
A MyMyelomaTeam Member

I think I need a word with my oncologist Donna or do more research I don't have clue about my mm I think I have inherited an ostrich mentality and buried my head in the sand

October 20, 2024
A MyMyelomaTeam Member

Good luck with your cart t therapy.Fatigue is horrible when I cannot do anything I feel terribly guilty about it.The treatment plan in the us seems to be vastly different to here,they don't offer regular scans just bloods every 3 months.

October 20, 2024

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