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Real members of MyMyelomaTeam have posted questions and answers that support our community guidelines, and should not be taken as medical advice. Looking for the latest medically reviewed content by doctors and experts? Visit our resource section.
August 23, 2024
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Answer Summary

Members responded to a question about lowering Revlimid from 10mg to 5mg after 2.5 years in remission, with the strong shared advice being to... Read more

Members responded to a question about lowering Revlimid from 10mg to 5mg after 2.5 years in remission, with the strong shared advice being to speak directly with an oncologist before making any dosage changes. Several members shared personal experiences, including one who successfully reduced from 10mg to 5mg after years of stable numbers, and others who moved to lower doses of Pomalyst, noting that results can vary and adjustments may be needed over time. A recurring theme was staying proactive by using tools like MyChart to communicate with doctors and tracking lab results closely.

A MyMyelomaTeam Member

I agree with the information above. I am currently in what may be termed remission and my Pomalyst is down to 2mg for 21 days and 7 off. Still get Darzalex Faspro 1800mg injection every 28 days.
After talking to my VA oncologist and my civilian oncologist I have opted to continue this regimen as I have no side effects from the meds. If I did have side effects it could change my thoughts but as of now I can do this for ever or until I do start experiencing side effects.
For me this is an easy decision at this time.

August 23, 2024
A MyMyelomaTeam Member

Yes, I spoke to my doctor and she agreed that switching to 5 mg was a good plan. The 5 mg capsules are so much easier to swallow and they are working just fine for me! I have been in remission for almost 4 years.

December 25, 2025
A MyMyelomaTeam Member

Speak to your Doctor.

September 11, 2024
A MyMyelomaTeam Member

What are the best things you think about is good for you go ahead and wish you best of health and happiness.No Delay

September 11, 2024
A MyMyelomaTeam Member

Hi Sarah. I was just intent on lowering whatever I could. My #’s had been VGSR for quite awhile, so I asked to go down from 10 to 5 and we did. After 5 years on the Rev, I started to get some diarrhea every other day, so we switched to 2mg of Pom. That did fine for about 6 months, so I asked to reduce to 1 mg Pom. Now my lt chain ratio is going up, so we’re going back to 2mg Pom and see if #’s straighten out. So, you never know if reducing will be ok or not.

September 11, 2024

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