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Real members of MyMyelomaTeam have posted questions and answers that support our community guidelines, and should not be taken as medical advice. Looking for the latest medically reviewed content by doctors and experts? Visit our resource section.
May 23, 2024
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A MyMyelomaTeam Member

Dorian, I had my SCT on March 16, 2023. Had a bone marrow biopsy on May 5th, 2023 and I was already in remission, and MRD 0.
A year has gone by, and just had my bone marrow biopsy on May 1st. Had an appointment with my myeloma specialist at UCSF 2 days ago for the results and thank God my bone marrow still clear, my MRD still being 0
And my FISH test looks great, no translocations, no abnormalities!
Since 2 months after my SCT I'm on a monthly maintenance treatment of a Darzalex shot, no side effects and, until now is working great.
I still have ti go for my myeloma panel every month, but is very true...having myeloma is not a sprint, but a marathon!
Wish and pray 🙏 for excellent results on your side!💚

May 23, 2024
A MyMyelomaTeam Member

I think everyone is so different there are certainly different results . For me I still had a small percentage of protein show in my BMB so I was on Kyprolis infusions for several months until I achieved remission. So it didn’t happen right away for me but it’s been seven years since then. I feel very blessed and thankful for this time.

May 26, 2024
A MyMyelomaTeam Member

I went into remission before the stem cell transplant . I went through 4 months of Revlimid and Velcade that put me in remission but mine I have been told it was so aggressive that I would not stay in remission because of chromosome 13 had to be destroyed snd required 2 SCT 100 days apart

May 23, 2024
A MyMyelomaTeam Member

By the end of your 100 day recovery period you should be in remission.

May 23, 2024
A MyMyelomaTeam Member

I was told by my oncologist the reason the say MM has no cure is once you been diagnosed you will always have a low number of proteins which many are unmeasurable.

May 26, 2024

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