Neuropathy Treatment | MyMyelomaTeam

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Real members of MyMyelomaTeam have posted questions and answers that support our community guidelines, and should not be taken as medical advice. Looking for the latest medically reviewed content by doctors and experts? Visit our resource section.
Neuropathy Treatment
A MyMyelomaTeam Member asked a question 💭

Has anyone heard of or tried Combined Electrochemical treatment (CET) for neuropathy? I have a consult tomorrow with Loma Linda Medical Center here in Southern California to see if is something I would benefit from. Insurance doesn’t cover it, but the consult is free so going to hear what they have to say.

posted May 6
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A MyMyelomaTeam Member

Hi Karen,
Here is info from a Google search.
CET involves the use of local anesthetics to block pain and other nerve function in the distal lower extremities, followed by electrical cell signaling treatments (EST) to both lower extremities. First, a low-dose, low-volume injection of local nutrient-infused anesthetic (Na+ channel blocker) is injected into the target region, followed by treatment with the EST device.¹⁹ The device combines, and simultaneously delivers, frequency-modulated (FM) and amplitude-modulated (AM) electric cell currents in a pulsed electromagnetic fields (EMFs).²⁰⁻²²

My Accuncture has some similarity whereby I have needles inserted with a slight electrical charge at the pathways. There are 2 components I found in my neuropathy as pain and the other numbness. My pain is dramatically reduced while the numbness is about the same so far. I have more treatments scheduled to hopefully reduce the numbness. My pain on 1-10 scale went from an 8 to 1-4 variability according to my diet and exercise causing inflammation. My numbness is a 1-6 variable level. I can actually take Tylenol upon inflammation to help reduce pain.

posted May 7 (edited)
A MyMyelomaTeam Member

Let us know, sounds interesting.

posted May 6
A MyMyelomaTeam Member

Hi Dawn,
I have been taking vitamin B12, using Kinesiology tape on my feet, moisture lotions on my hands and feet and recently having Accuncture treatments. Gabapentin made me sleepy and has many disadvantages to me so I stopped using it quickly. All my symptoms vary considerably and all these solutions have helped, but not eliminated neuropathy. Inflammation aggravates neuropathy, walking hurts my feet. I use Orthofeet and Skechers shoes which help too. If you want to apply kinesiology tape check my page. My Accupuncture treatments treat the two components of neuropathy which are numbness and tingle pain. The pain has been greatly reduced, but the numbness is still there so far. I am still getting treatments. It appears to be worse late at night until mid morning?
There are many options as I have listed so give them a try as applicable to your issues. I hope this helps.🙏

posted May 6 (edited)
A MyMyelomaTeam Member

How can neuropathy be treated in myeloma patients?

For managing peripheral neuropathy in myeloma, several treatment options are available:

1. **Prescription Medications:**
- **Antidepressants** such as Cymbalta (Duloxetine) can be used to manage pain.
- **Anticonvulsants** like Neurontin (Gabapentin) and Lyrica (... read more

How can neuropathy be treated in myeloma patients?

For managing peripheral neuropathy in myeloma, several treatment options are available:

1. **Prescription Medications:**
- **Antidepressants** such as Cymbalta (Duloxetine) can be used to manage pain.
- **Anticonvulsants** like Neurontin (Gabapentin) and Lyrica (Pregabalin) help reduce pain signals from damaged nerves.

2. **Physical Therapy and Exercise:**
- Engaging in low-impact activities like swimming, biking, and stretching can alleviate neuropathy symptoms.
- Physical therapy can improve balance, strength, and safety.

3. **Over-the-Counter Medications:**
- Mild to moderate neuropathic pain might be managed with Tylenol and topical pain patches and creams, such as lidocaine.
- NSAIDs like Ibuprofen or Naproxen should be avoided due to the risk of kidney damage in myeloma patients.

4. **Alternative Remedies and Techniques:**
- Complementary therapies such as acupuncture, massage, and relaxation techniques can be beneficial.
- Members have found relief by applying menthol-based creams or massaging cocoa butter into affected areas.

5. **Orthopedic Shoes:**
- Supportive shoes can reduce pain in the feet and legs. Brands like Orthofeet are recommended by some patients.

Always consult with your doctor before starting any new treatment to ensure it does not interfere with your myeloma treatment.

 This AI-generated response comes from MyMyelomaTeam and other selected sources. It is not a substitute for medical advice. Always ask your doctor about specific health concerns.

Managing Peripheral Neuropathy in Myeloma | MyMyelomaTeam
Treatments for Myeloma | MyMyelomaTeam
posted May 6
A MyMyelomaTeam Member

Maybe ask why it is not covered?

posted May 8

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