I’ve read a case study saying people who have a SCT and Zometa/Xgeva are far more likely to have jaw death due to the SCT chemo med

I was on Xgeva monthly the first year, then every 3 months the 2nd year, then started every 6 months, but was stopped due to dental issues. My bone density improved. I also take vitamin d3 and calcium.

Laura, you didn't mention weight bearing exercises and strength training. That's supposed to help our bones. Did your doctor say anything about them?

Dr Brandy -has me take Strontium Citrate - 680mg, 2 hrs no food.

Pre & Probiotics, creating Butyrate in the Colon and the value of a Plant Diet to Enhance the Effectiveness of MM Treatment.

The FB Forum - BEATING MULTIPLE MYELOMA WITH A NATUROPATHIC APPROACH

Dr. Dominic Brandy - Beat Back Cancer Naturally:

Prior to treatment, loaded up on Vit D (moved from 38ng to 84ng - taking 15,000IU daily). Then plenty of Magnesium (400mg magnesium glycinate + 200mg magnesium citrate daily), Vit C (2000mg daily), Vit K2 (200mcg daily), Vit K (120mcg daily), Calcium Carbonate (1500mg - 2 TUMs daily), Strontium Citrate (680mg late at night - 2hrs away from any calcium intake).

The Proper Pre & Probiotics create Butyrate in the colon.
Butyrate resets the proper balance of IL-17 that is normally disrupted by active MM. When restored, osteoblasts activity is available to perform bone regeneration, provided adequate amount of Minerals and Vitamins are available.

The Pro & Pre Biotics:
Pendulum Glucose Control - 2 pills daily - Probiotic
Microbiome MegaPre - one scoop daily in 16oz water – Prebiotic.

Very Active Bone Lesion MM Tumor (Last Sept, 23')
I started Revlimid & Dex on Sept 1st. Cancer was gone in a week. Lesion was repair in 3 weeks. No Radiation or operations.
Details at @A MyMyelomaTeam Member

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Daily I take:
Resveratrol 700mg
Green Tea Extract 725mg
Echinacea 955mg
Mushroom Synergy 15 types
Vit D3 10000 IU
Black Seed Oil 1000mg
Super Omega-3 2000mg 2x + 300mg polygenic oil
Vit C 1000mg 2x + other items
Calcium Carbonate 1500mg (2 Tums)
Berberine 500mg 2x (now doing a 1 week break for every 6 weeks)
Apigenin 200mg at night
K2 200mcg
K 120mg
Magnesium Glycinate 400mg
Magnesium Citrate 200mg (no longer need since I've stopped Revlimid)
Multi Vitamin for trace minerals
5 types nuts & 3 types seeds - just a small hand full of each. I carry them in a plastic bag and eat from through the day.
Strontium Citrate 680mg - must take 2 hours away from calcium.
IgG2000 powder to boost IgG.

MegaPre - Prebiotic
Pendulum Glucose Control 2x daily - shuts down IL-17, Boosts osteoblast activity for rapid lesion repair. Provided adequate Calcium, Vit D, Vit C, Magnesium, etc. are consumed.

4 Curcumin products
includes the original 8 grams C3 wBioperine
Single doses of 3 others delivery by different pathways –
Lymph system, fenugreek, proprietary formula
Longvida, CurQFen, NutriDyn

First Press Extra Virgin Olive Oil - The Governor
4 to 6 tablespoons daily - 2 per when taking some Curcumin products.
Nutritional Yeast w OJ 3x daily -
Cacao powder in decaf
Dates
Fruits & Veggies
Soy Milk
Various beans & Ezekiel bread full proteins

No red meat, chicken, cheese, fish, or eggs.

No Whey Protein products
No Vital Protein Collagen
Both provide high levels Methionine for cancers to
grow - normal cells do not require it.
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Mentioned Users

A MyMyelo...

I agree but that's what my Rheumetologist said. So far I have refused to take them. I don't want dead bones. I want bones that will be able to heal.