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March 7, 2024
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Answer Summary

Members overwhelmingly confirmed experiencing vision changes since their diagnosis and treatment, with many describing blurred vision, dry and... Read more

Members overwhelmingly confirmed experiencing vision changes since their diagnosis and treatment, with many describing blurred vision, dry and itchy eyes, cataracts, floaters, and double vision that often worsened during active treatment cycles and improved during off weeks. Several members shared that steroids like dexamethasone and medications like Revlimid, Velcade, and Carfilzomib were frequently cited as contributors to vision problems, with some requiring cataract surgery and others finding their eyesight returned to normal after completing treatment. A recurring theme was the importance of having annual eye exams with an ophthalmologist to monitor changes closely, distinguishing between normal aging and treatment-related effects, and avoiding unnecessary expenses on new glasses until treatment cycles stabilize.

A MyMyelomaTeam Member

YESS! I notice that my eyesight is worse the I am on my 21 days of taking Revlimid (lenalidomide) and on my 7 days off its a bit better.

March 7, 2024
A MyMyelomaTeam Member

I see the optometrist annually

April 2, 2024
A MyMyelomaTeam Member

I have dry eyes now- the drops help. I don’t drive at night..

March 12, 2024
A MyMyelomaTeam Member

Dexamethasone affects the eyes

March 10, 2024
A MyMyelomaTeam Member

We all need to make sure we get our yearly eye exam with an ophthalmologist. Vision changes need to be addressed as soon as possible 💕

March 8, 2024

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