Did Anyone Else Have To Jump Thru Hoops To Get Diagnosis? | MyMyelomaTeam

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Did Anyone Else Have To Jump Thru Hoops To Get Diagnosis?
A MyMyelomaTeam Member asked a question 💭
posted February 12
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A MyMyelomaTeam Member

I am just starting. I was sent to a Nephrologist because of kidney/blood work issues. That doctor did durther blood work. She is sending me to a hemotologist. This has been 6 months. Doctors in all fields in the St.Louis metro area take 3-6 months for new patient appointments.

posted February 14
A MyMyelomaTeam Member

Absolutely, I just did a patient experience livestream on the Multiple Myeloma Reseach Foundation site about that very topic. Search Health Equities on the MMRF site. I was almost dead by the time that I was diagnosed. I was sick I know for aleast two years before or maybe even longer! It is very scary to know how many people that are misdiagnosed. But we are working on a solution!!!

posted February 13
A MyMyelomaTeam Member

No. Luckily my primary doctor (who has 12000 patients) immediately recognized the MM trait of the M-spike. While it wasn’t confirmed until other tests were conducted his experience proved invaluable.

posted February 13
A MyMyelomaTeam Member

🙁

posted February 17
A MyMyelomaTeam Member

the doctors here in Mississippi are all about 6 months out on appt. i can't even get into my primary, i get told to go to one of the hospital walk in clinics. mind you these are very bare bon facilities.

posted February 16

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