Hi Lin3 - I was taking Everything Supplement wise, before, during, and after treatment during this recent treatment and some of them (that I knew about then) during my original treatment two years ago.

For this recent bone tumor, I returned to MRD Negative in 6 weeks. This bone lesion recovery has been faster and more complete regarding the repair of my humerus bone than any of my Oncs and Docs have ever seen. I’ve detailed it at my Story @A MyMyelomaTeam Member.

My Onc has 43 years in Oncology. When I showed him my Labs and the quickly rising AlkPhos and my Completely repaired humerus bone lesion. He said to a young visiting colleague - “this is what happens to a young child when they break a bone” - pointing to my AlkPhos of 551, rising from 78 three weeks prior, just before I started Revlimid and Dex.

He understood what happened, just never expected it in an older adult (just turned 70).

Two years ago I was only taking C3 Curcumin as an additional supplement beyond their requested items of D3 and Calcium. My Onc knew and was fine with it. I took it through Induction for 3 months and my Maintenance for 4 months.

Two years ago I went from 5.2 MSpike, 5915 IgA, t4;14, a 208 K/L ratio, and 80% bad plasma, to Normal Labs after 6 weeks and MRD Negative in 7 months total and without a SCT.

I continued with C3 Curcumin, 8 grams daily during these past two years. When my humerus lesion went (inadvertently) untreated for three months (they thought my low numbers were from my marrow - they allowed me 3 months to try alternative meds, which didn’t help to kill off the bone cancer), just before starting treatment I had a BMB and a PET/CT. They were clear of activity except at and around my humerus lesion.

Something shielded my Marrow which they can’t explain. I expect the Supplements, my new Plant Based diet, and that I recovered from MM before and Kept my Immune System (no SCT). Our immune system learns how to kill pathogens that it’s overcome before. Our Natural Killer Cells (NKC) do the same and never needed to experience it previously.

My BMB last Aug showed 11% NKC.

Revlimid and Dex were mandatory to kill the bone tumor but I stacked the deck to help them perform better than they ever expected.

Yep - Supplements Before, During and After

Mentioned Users

A MyMyelo...

Hi Maryanne - I’ll be glad to add that info. It’s going to take a few days. Hopefully I’ll post this later next week

Larry,
My whole pelvic region, hips included, is deteriorating. When I eat too many salty foods (chips, etc) I can’t sleep at night from the pain. During the day I get shooting pain down my thighs. If I eat right AND take my supplements, no pain, no problem sleeping. Everyday is a balancing act. I’m just hoping my severe osteoporosis is not getting worse. I hope your experience and mine can help others.
Paula 🌹

There are two main forms of vitamin K:
Vitamin K1 (phylloquinone): found in plant foods like leafy greens
Vitamin K2 (menaquinone): found in animal foods and fermented foods, also produced by gut bacteria.

Vitamin K activates proteins that play a role in blood clotting, calcium metabolism, and heart health.

One of its most important functions is to regulate calcium deposition. In other words, it promotes the calcification of bones and prevents the calcification of blood vessels and kidneys.

Some scientists have suggested the roles of vitamins K1 and K2 are quite different, and many feel that they should be classified as separate nutrients altogether. However, more human studies are needed before the functional differences between vitamins K1 and K2 can be fully understood.

Vitamin K has a very low potential for toxicity. This is why there is no established Tolerable Upper Intake Level set for vitamin K. There is no known toxicity for vitamin K1 or K2 from food or supplements.

People on blood thinning medications like Warfarin should keep their vitamin K intake consistent and avoid large quantities of vitamin K-rich foods or large fluctuations in vitamin K intake.

This is because sudden increases in vitamin K may interact with the medication, leading to increased or decreased blood clotting.

Larry2
I admire you for being able to learn about things that have helped you as well as keeping up with it all. I seriously don't think I have what it takes to be consistent. I have a hard enough time taking all the meds I have to take already with water. I hate Taking pills. Can't imagine the cost but what is alarming but doesn't surprise me that oncologist or medical team does not disclose this information, nor do they make you feel you would benefit. I had a conversation with my dietician a month or so ago. I ask often about supplements. I was told that if you are not low in them such as B12 or D3, etc. you didn't need to take them. In fact she also Said that taking vitamins that you are not low in can be harmful. It's really confusing when everything you read is how chemo drugs depleats you on so many counts, yet the professionals aren't supporting that. Is it because they don't want us well? Is it about money? We all have heard this. It is so confusing to me as to what you should do. Hopefully others will give their opinions as to what they take to stay well and boost their immunity.
Im so glad this has worked for you.