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Ed's oncologist has said this would be the next treatment for his MM. (diagnosed 2016, had a SCT in 2017, been on Rev, Dara and pomylist, and for the past year and a half, Dara and Ninlaro). His kappa #s are creeping up, but Oncologist doesn't want to change just yet. We asked about Elranatamab and Talquetamab and he said they were too complicated, but what he told us about Cytoxin seemed more complicated than what we have read about either of the two newly approved ones. Just looking for… read more
I was on that for two weeks just before my CAR-T therapy transplant. Didn't care for it. I know it's used for other cancers, unlike other myeloma meds which are targeted therapies. Did he mention Teclistamab? Yes, you have to be inpatient for a week and get step up doses for most of the newer drugs. I wonder if that's what your Dr was referring to?
Ed had his blood test Monday. Results today. All numbers good, but Lite Chains;went up 100 points. Message from Dr G. says give it some time to work with Dara. Those numbers going up scare him
This will be Ed's fourth week on Cytoxin. He is taking it in capsule form (10 pills, 50MG, once a week. Side effects have not been bad. He is sleepy for the 3rd and 4th day after taking it.Ninlaro was a little harder on him. He won't have a blood test til next week. We'll see what that has to say.
I can't remember what it feels like not to be on treatment. I am truly happy for you. 💖
@A MyMyelomaTeam Member I am, thank you! It's wonderful to be cancer therapy free. I almost feel normal again. 😊
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