Hi, just wanted to tell you a little of what I have learned this week. My husband Ed, (was diagnosed with MM in 2016) has Necrosis of the jaw. He was on Zometa for three years. Longer than recommended. He has recently had to have some teeth pulled. They were just crumbling, and his own dentist could not keep up with them. She spoke to a surgeon Ed has seen in the past, who had not wanted to pull any of his teeth, because of the necrosis. The surgeon agreed that they would have to come out… read more
I had too have all my top teeth pulled because they were crumbling so I went too a dental surgeon and he pulled two too see how well I would heal then after I healed up fine he pulled the rest. The plan was too get dentures but I have been sick off and on since March and just haven’t been able too get too the denturist too get them so maybe soon because I am starting too feel better.
You have to be your own advocate for sure. Read my story and you will see why.
Apparently it's hard to find oral surgeons that know how to treat osteonecrosis of the jaw. Myeloma patients are more at risk because we are on bisphosphonates longer than any other patients. I hope the worst is over for Ed.
That’s what my Oncologist recommended for my teeth also.
Pbaldini......that is exactly what the surgeon had been doing. The decision was made between Ed's dentist, his surgeon and his Oncologist. Believe me, it is a scary process. Why the turn around, we aren't really sure.