Feeling Pain Around Pelvis Area. | MyMyelomaTeam

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Feeling Pain Around Pelvis Area.
A MyMyelomaTeam Member asked a question šŸ’­

Hello team,
I've been lately having dull pain on my pelvis. Anyone has had the same experience? I was diagnosed with a kidney stone, but my urologist also mentioned the pain could be due to myeloma. I've been in remision since June 2023 after my SCT.
Appreciate your comments!
I got this šŸ’š
Elizabeth

posted December 14, 2023
ā€¢
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A MyMyelomaTeam Member

Sorry about your pelvic pain - I hope and pray it goes away! I have an achey pain in my hip joints but not my pelvis. It will be interesting to see if others are experiencing this. šŸ¤·šŸ¼ā€ā™€ļø
Have a good Thursday - we are off to see the grandkids in their school Christmas production this morning. ā¤ļø
- Dawn

posted December 14, 2023
A MyMyelomaTeam Member

I have really bad pelvic pain and doctors believe it is caused by MM. Iā€™m in remission but MM caused damage to my pelvic area while active. Celebrex has helped a lot to alleviate my bone pain.

posted December 17, 2023
A MyMyelomaTeam Member

I had a hip replacement and two knees replaced yrs before MM. Since my chemotherapy and later SCT my pelvis, hips and knees hurt more than they used to.

posted December 17, 2023
A MyMyelomaTeam Member

Elizabeth, did the urologist order a scan? My goodness. It could be lots of things. It could be myeloma or it could be something else. It should be evaluated. I hope you get answers soon šŸ’•

posted December 14, 2023 (edited)
A MyMyelomaTeam Member

I have Ć  .4 inch hole in my upper hip bone from MM..I was detected by a PET scan at.the end of Sept. This caused my diagnosis to be changed from SMM to Active MM. My Cary oncologist wanted to start chemo, but got a second opinion from UNC Chapel Hill Specialist who has seen hundreds of MM cases. As I had only one hole, it was decided to use radiation to stop it. Then go on to monitor. I had 25 radiation treatments. Finished on Jan 4. It was hoped we could reverse to SMM and continue. My latest testing( 1 week ago) , shows a modest m spike lowering, but increased Kappa number. We will test again mid March. Then decide on chemo. As radiation kills good bone as well as deficient bone, I will have that hole from now on. I get pain similar to a toothache every so often, but we think the treated bone is still healing. I have no restrictions. I rototilled my garden yesterday.
Stay strong all my friends. There is new help coming.

posted February 7

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