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A MyMyelomaTeam Member asked a question 💭
Florida, NY
December 9, 2023
 · 
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A MyMyelomaTeam Member

I take Colestipol dose at 1 gm every morning. It works for me. I take Revlimid 15 mg level MM maintenance.

December 19, 2023
A MyMyelomaTeam Member

Revlimid caused chronic diarrhea issues for me. I took it for four years after my stem cell transplant. The only thing that helped was Imodium. After my relapse, I started a new regimen with Pomalyst, rather than Revlimid. Pomalyst has been much kinder to my gut.

December 13, 2023
A MyMyelomaTeam Member

They gave me that as well, It reminded me of Tang, I could barely tolerate it after a while. In the end I would mix it with apple juice. There is something similar to this a lady mentioned she took, I am going to ask my doctor about it. It was Colestipol 1 gm if that is just a pill & not this mix, I would want to try that. I'm wondering after all these years, what the Imodium is doing to me 🥺 You would think they would have this all figured out by now. Why are doctors so surprised I still have this issue, or the issue at all is what confused me. Thank you! Patty

December 10, 2023
A MyMyelomaTeam Member

Tom it is unfortunately a problem for many. My husband takes cholestyramine as well.

December 9, 2023
A MyMyelomaTeam Member

Hi Patty, thanks for your reply. Good info to know I can take more Imodium than I do!

December 9, 2023

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