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A MyMyelomaTeam Member asked a question 💭
Durham, NC

Has anyone else encountered this? Did you stay with Revlimid?

November 25, 2023
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A MyMyelomaTeam Member

I did after 5 years. It was very mild and did not leave any side effects. I was already on Eliquis because I had had 2 episodes of atrial fib. Dr. Took the Rev down to 5 mg. And it never happened again.

November 25, 2023
A MyMyelomaTeam Member

Hi I had several small strokes 8 years after revlimid. I think they came right after the Covid vaccine. With that the dr stopped my rev maintenance. That was 21/2 years ago. My numbers were great for most of the 8 years, and we never knew the cause. MM can also cause strokes by mine had been under control for so long that didn’t make sense either. 🤷🏻‍♀️

December 19, 2024
A MyMyelomaTeam Member

I was changed from Revlimid after about 8 years (no clots, just not responding). I was put on Pomlymist for about 10 years (I think, time uncertain) Then my Oncologist took me off it and I am not taking anything at this time
I am sorry I didn't answer your question, but I wanted share what I had happen to me. I guess everyone's trip is individual.
I hope this helps you understand your story. Gary Dias
I have been living with MM since 1999 diagnosis. Every new day is a blessing.

June 7, 2024
A MyMyelomaTeam Member

I am also on Revlimid and Eliquis and had clots about a year and a half ago they seemed to have gone I haven’t had any more issues since being on Eliquis

February 24, 2024
A MyMyelomaTeam Member

I was initially on aspirin but still got a clot in my leg on Revlimid now just take Eliquis 2.5 mg BID and 10 mg of Revlimid FYI Eliquis is expensive you can get a grant for help paying from healthwell fund

January 24, 2024

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