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For the past 8 months they have been scheduling and then cancelling my husbands asct. In September they collected his cells. He had some issues with the collection. The nurses who were doing the collection hurried the procedure which made his blood pressure low. I had warned them that we had similar issues the night before during his dialysis and ended up stopping the treatment early because of this. The new doctor on the transplant team could not understand even two days later that we did… read more
@A MyMyelomaTeam Member My oldest brother (a MM patient) lived with me and my husband for a little while here in Texas (near Waco).
He started doing home dialysis in Alabama (his regular residence with his wife), but while he was here he was able to get supplies shipped to our home via UPS, no problems, except he and I had a hard time moving them up the steps into the house. Him with MM & associated symptoms, me w/newly implanted defibrillator and not supposed to be lifting things.
The dialysis center y'all are working with should be able to coordinate a move to Texas (or elsewhere) or direct you to an entity that can help you.
I am sincerely hoping things improve and y'all can get better care wherever y'all might go. 🤗🌞🌻
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