My Dr at Emory University Hospital in Atlanta started me on Oxycotin 20mg twice a day & Oxycodone 5mg for breakthrough pain for about 4 months. When he told me to stop the Oxycotin I did but to take the Oxycodone 5mg when needed. I only take it when I keep hurting as I can't take N-saids or Tylenol because of stomach issues. For fatigue I usually lay down in bed with pillows propped up at my back & legs straight. That also helps my back also.
I was on Revlimid 10mg to start with then my Dr changed it to 5mg because I was having severe diarrhea starting in 2013. He finally took me off of it in 2019 because of the diarrhea, but unfortunately I still have diarrhea to this day. I have been to 3 GI doctors for it & they cannot find a cause for it except it was caused by the Revlimid that I had to take.
I have been in remission for almost 11 years now. I fell 2 years ago & had to have a partial hip replacement & I am still having pain from that because the doctor didn't get it spaced right & I found out he lost all his privileges in hospital in Birmingham 3 months after my surgery.
I try to deal with bone pain & fatigue by resting most of the time & take a pain pill when I absolutely have to.
You take one day at a time do what you can at the time.
I just keep the faith 🙏 that a cure is coming.

I filed for social security disability and got it the first time, so I did not have to work. I found that walking helped however when I felt fatigued, I took naps. For the back pain, I took Tylenol 650 mg, my orthopedic doctor told me I could take up to 2600 mg per day. I, too, have osteopenia so the over-the-counter Tylenol helped me.

Sara,
Are you taking calcium with D3 & K2? I take MRM Bone Maximizer III -4 capsules. It’s really helped me. Calcium also helps dull pain. Fatigue is a hard one. Sometimes exercise will help, if you can get out of bed. Lol. I’ve been sleeping a lot.
Paula 🌹

Good question.