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I’m post transplant 4 months and in remission. Doctors put me on 15 mg revlimid 21 on 7 off and 20 mg dexamethasone weekly for maintenance meds. I’ve been on these 6 days and my legs are hurting, burning, and pins and needles. Anyone else on these and having these issues?
I already have, they stopped it yesterday, legs already feel better. I’m guessing Monday stem cell doc and oncologist will have an answer
Gary, let your doctor know. Maybe you can ask about a lower dosage.
I would see if you can do the Revlimid 10 mg 21 on 7 off Revlimid caused my toes to go numb and fatigue If you are MRD negative I am not sure why the steroids I think the doctors use too many medications for insurance reasons Every one is different
I did talk my Md to letting me have 10 days off I decided not to do any secondary meds I have an aggressive myeloma but my last bone marrow biopsy was negative I am over 2 years SCT
Almost 2 years post transplant, been in remission for a good nine months 10 mg Revlivid plus bone strengthening shot and Velcade shot monthly all for maintenance. Looking forward to October to start cutting back.
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