Connect with others who understand.

Sign up Log in
Resources
About MyMyelomaTeam
Powered By
Real members of MyMyelomaTeam have posted questions and answers that support our community guidelines, and should not be taken as medical advice. Looking for the latest medically reviewed content by doctors and experts? Visit our resource section.

The Scrambler

A MyMyelomaTeam Member asked a question 💭

Has anyone tried The Scrambler for neuropathy?

It’s a treatment of some electrodes just taped to the skin. It’s intended to teach the brain that the impulses coming from the damaged nerves are not to be considered as pain messages.

This treatment was recommended to me by my Consulting Johns Hopkins Doc. I never heard back from that department but I’ve read about this treatment being helpful. I’m going to look for a provider closer to home. No idea if it’s covered by Medicare.

June 26, 2023
View reactions
A MyMyelomaTeam Member

I’ve setup a schedule for my first two treatments next week on July 5th & 6th. Based on those results, we’ll setup a schedule for the rest.

June 28, 2023
A MyMyelomaTeam Member

Now that you have explained it, sounds a whole lot like TENS therapy! TRANSCUTANEOUS ELECTRICAL NERVE STIMULATION! I use to be in Home Medical Business we sold and rented many of these. Not really that expensive. You just have to find out the proper location to put the electrodes. There is also a unit called a MUSCLE STIMULATOR, it’s a little more involved and and stronger. Need to be a little more careful with this one !

June 27, 2023
A MyMyelomaTeam Member

Hi Marcia - Sorry to hear it didn’t help. Since Posting this question I found the US distributor. He says a single treatment should show if it’s going to work or not to then determine if it makes sense to complete the recommended 10 initial treatments. He said they get 80% success. They’re working on getting it covered with Medicare. They hope in a year +/- some. I think John Hopkins is doing a clinical trial or something similar. I’ll contact them to see. Calmare is the same device.

Did you get treatment with a MD, RN, or PA at that facility?

The sales person said they require it be administered by a trained MD or the MD’s trained staff. New the machine costs $60,000.

June 26, 2023
A MyMyelomaTeam Member

Larry,
One of my doctors recommended Alpha Lipoic Acid. My Mom swore by Nutritional Yeast 3-4 times a day. See the attached list of supplements.
Paula 🌹

June 26, 2023
A MyMyelomaTeam Member

Larry, Yes. about two years ago I had this treatment done. It was called Calmare scrambler therapy. It was in an office where they do acupuncture, physical therapy, message, etc. Medicare did not cover this. It cost over $800, but my neuropathy was so awful that we did it. An electrode was taped to my ankles, feet and hands. The machine sends impulses To the areas And they keep increasing it until you feel it in that spot... Then you sit with it on for about half an hour. We did this for 4 times, 1 week apart. It did absolutely nothing for me. But I hope that if you choose to do this, it works for you and you get some relief for your neuropathy. Good luck to you. Stay strong. Marcia 🌷

June 26, 2023

Related content

View All

I'm Interested To Find Out How Many People On This Forum Have Been Deemed Their Cancer Is In Remission And Are - No Longer Taking MM Meds ?

A MyMyelomaTeam Member asked a question 💭

Has Anyone Had Issues/side Effects From Curcumin?

A MyMyelomaTeam Member asked a question 💭
Hollis AK

How Many Sessions, Bone Marrow Transplant And Palliative Care

A MyMyelomaTeam Member asked a question 💭
Fort Worth, TX
Already a Member? Log in