I believe my case can provide alot of early info not previously known or rare. From the moment my pain started I had a low M-spike of only .7 and my pain has been bad enough that I went to the emergency room 6x last year. I have had lots of imaging and blood test that I believe can add insight to earlier detection of people that will progress to MM. I was told that my odds of progression would be years at best. But I felt it in my body and less than a year I was right. Then I was told I had 3… read more
I guess the best way for us to help other people is to participate in clinical trials. Also to participate in fundraising events to raise awareness for myeloma. Also you can go to Healthtree.org. Sign in. Put in your treatments. What works what didn't. I gave them permission to get my records so they can look at my labs. I also joined the Myeloma Myeloma Research Foundation's CureCloud. Hope this helps🥰